I was diagnosed with PCA in May 2015, age 53, PSA of 227, Gleason 4+4=8. 1 spinal met in T8 vertebra. Immediately started Lupron, radiation to T8, then early chemo and later added Zytiga (and recently had prostatectomy). PSA is undetectable...and I’m still working full time and doing very well.
The issue I have is that at some point after I started treatment, my heart rate will no longer go above 120 beats per minute. This causes me to be out of breath walking up hills or taking more than 1 flight of stairs, or even walking off a plane when it’s on a steep jetway. But I can still ride my Peloton 10 miles per day, walk 3-4 miles at a time, etc... I just cannot go as fast as would be normal for someone my age. As recently as late 2014, I could run with no issues, which is why I think the condition, called chronotropic incompetence, was caused by some part of my treatment
Anyway, I’m wondering if anyone on this forum has had this phenomenon. I have had a detailed coronary exam and they say that other than an inability to get my heart rate up, all is fine. I’m having a pulmonary capacity and performance test at MD Anderson on Thursday. They are hypothesizing that maybe I sustained some sort of scarring of the lungs due to the radiation treatment. If that comes back as ‘normal’, then I’ll probably just have to live with it. If they think that is the cause, I may qualify for a clinical trial.
Would appreciate learning more about any similar experiences anyone else may have had.