11/01/2016 – Complained to GP of increasing frequency of urination, given PSA test, results 78.9 referred to urology clinic at local hospital.
26/01/2016 – Urology clinic rectal examination – advised it probably is cancer – a bolt from the blue!
16/02/2016 - MRI scan + whole body bone scan
23/02/2016 - Biopsy
10/03/2016 - Diagnosed with T4 N1 M1a prostate cancer (MA1 due to non-regional lymph nodes ) but a negative bone scan. Disease is Gleason 8 and Gleason 9 or grade group 4 and 5.
Started Hormone treatment Bicalutamide pills for two weeks then Triptorelin injection, then pills for another two weeks then discontinue pills but continue injections every three months – advised this to continue for life. Advised incurable, inoperable, radiography not an option due to spread to lymph nodes and surrounding area. Advised life expectancy 3 – 5 years but may be extended by early chemo-therapy.
09/05/2016 - PSA 4
10/05/2016 - Signed up for chemo 6 treatments of Docetaxel at 21 day intervals commencing in 2 days
12/05/2016 - First Chemo
2/06/2016 - PSA 1.5 - Second Chemo - side effects not too bad
23/06/2016 - PSA 1.09 Third Chemo – side effects a bit more wearisome more fatigue and breathlessness.
07/07/2016 - Hospitalised with a chest infection - intravenous anti-biotics and oxygen for six days.
13/07/2016 - Discharged from hospital with a five day course of oral anti-biotics to be completed still feeling pretty wapped
21/07/2016 – Fourth chemo PSA 1.22
10/8/2016 - Fifth chemo PSA 0.7
1/9/2016 - Sixth and final chemo PSA 0.55. Still very fatigued and breathless, CT scan booked for later in the month just to check that there is nothing untoward that did not show up in conventional x-rays.
Ct scan showed nothing.
29/9/2016 - Had to visit my GP, legs and ankles swelled up badly - prescribed diuretics
21/10/2016 - legs still swollen - GP had taken advise from a cardioligist who suggested that the problem was down to a reaction between the chemo chemicals and amlodopine which I have been taking for the past couple of years. The amlodopine was replaced with a mild beta blocker which combined with the diuretics seems to have brought the swelling down almost completely. Still have a problem with breathlessness after the least exertion.
21/10/16 - PSA 1.16 - advised its not uncommon for PSA to rise slightly after chemo.
5/12/16 - PSA 0.77
27/2/17 - PSA 1.5 I expressed my concern to the GP that the PSA had doubled in three months was advised that with such low numbers it was not a cause for concern.
18/05/17 - Breathlessness situation improving.
22/5/17 - PSA 1.87 my GP advises me that a small rise is nothing to worry about but she intends to advise the Oncology clinic of the readings. Annoying as I'm only now starting to feel fully fit again!