26/07/19 I-PET scan : heterogenous markers suv (max 52) including mets
Doctor suggested luporide every after 3 months including chemotherapy (docetexal) every after 21 days
20/10/19 PSA: 0.72
30/10/19 II-PET scan: tumor size reduced to suv max 20, in two more areas, no new lesion seen
Total chemos: 6 cycles
Doctors suggested to stop chemo but continue luprolide
Follow up every after 3 months and next PET scan after 6 months
One important point he told which is a matter of concern that a patient life is just 2 years or 2.5 years not more than that. Is it true?? I am really upset...kindly tell is it really true in such cases ?
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Nick2019
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You can do better than that dismal stat . I was initially was told that I had 36 months . I’m working on five years. Others have even better stories of beating dismal life expectancies . We all will be cut short . This makes how we live today that much more valuable . Don’t believe that you have an expiration date on you . Break the mold .
Simple answer: whichever way you look at it, your doctor's number is wrong. Long term follow up on STAMPEDE and LATITUDE trials shows the median survival to be approx 5years. Average survival (which is the "expected" survival) is much longer, because the survival curve is not a "normal" curve: it's left-tail heavy, meaning more events upfront early-on, and fewer events as we move along. It may sound trivial, but the longer you survive, the longer your overall expected survival.
Also keep in mind that all the numbers are backward looking and don't take into consideration current and future new treatments.
My suggestion to you: don't think about these relatively useless numbers. Just focus on learning more about your disease and treatment options, and take charge of it.
My reply to this one is simple. If the 2.5 year life expectancy was true, you’d be texting with the afterlife on this site...I would’ve been dead a long time ago.
Nick, I just hit my seventh anniversary on Lupron. I have never had chemo or any other form of treatment except Casodex with the Lupron for the first four years. I am still hormone sensitive. Your doctors statistics are very dated and I would worry about how current he is on treatment Options. I personally would find a leading medical oncologist.
When I was diagnosed there were two pelvic metastases. Those metastases are no longer visible after seven years of Lupron, Casodex for four, and I have been taking an over-the-counter supplement called inositol hexaphosphate/IP 6/phytate since Summer, 2015.To appreciate the extensive Research on the supplement, you need to read AKM Shamsuddin’s 2011 text on “IP6 and Inositol “ available at Amazon. On my personal page you will find past posts regarding IP6.
After BCR my MO said I had 3 to 8 years to live. Received two shots of Eligard three months apart that brought my PSA down to undetectable. Been on a hormone vacation for 23 months with a current PSA of .6 as of October. When they give you an expiration date just try to take it with a grain of salt. As mentioned, they are based on very old statistics. Good luck!!!!
Maybe your doctor is trying to say that if you only have chemiotherapy your expectancy of life is about those years, but I'm afraid he would have to told you that there are others treatments, a full tool box. I use to visit some good websites to descover new therapies. I had docetaxel like you and ADT and after 2,5 years the cancers has shown activity in a lumbar vertebra. I had 3 sessions of SBRT, now I am waiting for image results, but I hope that are good because my blood test showed that the tumoral index is decreasing.
So, try to thing about all the science is trying to do for us and you will be quieter.
Mine said 44 months last year, I've also got high very PSA (1386), Mets to every bone in my Skeleton and extensive damage to Marrow in both Femurs. That being said the combined Chemo and ADT got my PSA right down and scan showed good improvement with Lymph nodes and Mets, so I'm feeling a LOT more optimistic that I did last Nov.
Just had my 3 month check up today, blood numbers are still good.
When so advanced things can go downhill pretty fast but I have read a few stories of people beating the odds so don't give up hope.
My first surgeon at Johns Hopkins told me I had 5-10 years. That was 27 years ago. Never let anyone tell you how long you have to live. You have never been on any ADT drugs. You could get a lot of good quality years out of these.
I am very thankful to all the members as you have provided valuable inputs. Keep encouraging others in such difficult times. There is always a ray of hope!!! May God bless you all...
Doctors advised to take Alfoo tablet and Mirabegron 50 mg tablet at night before going to bed. Its been 5 days taking this medicine suddenly there is little swelling on face and fingers. Can patient continue these tablets during night? Kindly advice
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What is a "normal" max SUV on PSMA-Pet scan?
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
PSA rising. The trend is not my friend.
Positive results, Pluvicto
Stymied and worried
