When I didn't know anything about PCa I was rushed into an RP and when that failed a worthless SRT. When my PSA reached 1 after the SRT my URO said to find a Onco. On searching on Google The Cleveland Clinic ads kept displaying on how they were experts in treating PCa..So I went to the CC and saw the head Onco on PCa. I told him my URO wanted to put me on Lupron. The Onco said my URO was wrong and rec'd Lupron because he liked me and cared about me. If the SOB liked me how come he didn't do a better job on the RP...the MF never even had time to answer my questions. Anyway, the Onco at the CC said I should do nothing now and maybe when the PSA reached 10 he would do a scan and think about Lupron.
I started doing some research about Lupron...the cardio side effects, diabetes and how Lupron almost always causes CRPC after 3 cycles...I thought Holy Shit....then I saw a video by Dr. Kwon at The Mayo Clinic. I called an made an appt with Kwon. At this point my PSA was 1.2....After spending $2000 on airfare and hotel rooms and spending 2 hours in the waiting room my name was called. I walked into Kwon's office and after 15 minutes in walks Kwon's PA...the little prick wouldn't take the time to answer questions but told me at Mayo they think outside the box. Finally Dr. Kwon walks in, shakes my hand, and tells me to come back after my PSA reaches 2 and they will do a Choline 11 Pet Scan...I saw Kwon for 5 minutes.
After 11 months my PSA reached 2..I spent another $2000 to go back to Mayo and had the Choline 11 Pet Scan...and it turns out my URO, "who liked me" had left seminal vessicle remnants....recommendation Cryo Ablation to area treated previously with SRT..I told my GP what Mayo said and he contacted the Onco at The Cleveland Clinic...the Onco called me and said don't do it because it won't work.
I liked Mayo's idea because I did not want to eventually go on Lupron. $5000 later ($2000 for air and hotel + $3000 out of pocket for the cryo my PSA was <.1
Check this out...turns out the MRI guided Cryo is investigational and only done at Mayo..so I was part of a study...the good Docs at Mayo wanted me to return every 3 months over a time frame of 24 months for an endorectal MRI.... At My Expense ($2000 a crack) = $16000...I thought the hell with that and never went back...at 18 months my PSA was .1 then .2 then .3...The Doc at The Cleveland Clinic said I told you it would not work...you would have gotten that 18 month PSA <.1 from a shot of Lupron.
At this point I said the hell with these Docs...they are over loaded with patients, don't have time to read all the studies and are FOS (full of shit). Check this out...I had been reading Dr. Strum's papers and how he advocates Cabergoline to block a back door...2 Onco's, 1 Uro, and my GP never heard about Cabergoline. In fact after the cryo at Mayo they never rec'd I go on Avodart, Metformin, or Cabergoline.
My best bet is to self direct my own treatment...against Nalakrats advice I gave up fishing ( I didn't want to end up sleeping with the fish), and started reading PCa studies, watched Dr. Myers videos, read all Dr. Strum's papers, and joined this great group. My GP is willing to write prescriptions as long as I bring in a study. So, IADT Casodex, plus Avodart, Metformin, Arimidex, and Cabergoilne + the usual supplements..so far my PSA is .1
Oh..I forgot to mention the great advice I got from The Mayo Clinic when they found out about the BCR after Cryo..."If you live long enough you will die from prostate cancer"...thanks Doc and fuck you.