About 2 years ago I tried to get into the ProstVac Trial at the NIH. At the time my PSA was .2 and one of the study researchers said that was to low and the minimum PSA had to be 2. About 3 day later she called me back and said they would lower the requirement to .8....she said the trial was still open and to call back when my PSA got to .8...but get this...it was OK that I was not Castrate Resistant. She also told me she was impressed by an Onco at The Cleveland Clinic..I am on Xtandi Monotherapy and wanted to try Provenge. I called and made an appt. with the Onco at The Cleveland Clinic. I refer to as Dr. Smuck. When Dr. Smuck walks into the office he jumps all over me for being on Xtandi Monotherapy. He said I don't know how you got Xtandi because you are supposed to be on Lupron until it fails, and you are castrate resistant, at which point you add Zytiga or Xtandi. I also told him about Dr. Myers and he said Dr. Myers was a quack. As far as Provenge goes he wants me to drop Xtandi and go back on Lupron until it fails and I am castrate resistant. When my PSA reaches 2 call him back and they will do a scan and then prescribe Provenge. I asked him wouldn't Provenge work better if I was not castrate resistant, he agreed but said they can not deviate from their protocols. Dr. Smuck stated The Cleveland Clinic is the top PCa hospital in the U.S.....but check this out, they do not offer the PSMA Scan and that is why I need a PSA of 2. Anyone know of a way to obtain Provenge without being Castrate Resistant outside of paying $100,000
This sounds more like the older approach. What did you do?