One of my problems associated with my disability is extensive chronic pain that I have now had for many years. One of the main problems I have is treatment can sometimes cause more pain and I become more depressed so I dread treatments that aggravate my joints. I am at that state now and I wish that they would just leave well alone and I would suffer my problems in some form of central place where I can just suffer pain in some form of level that I understand from my disability.
Now I am sixty four and was first effected by my condition way back in the mid seventies, it took the NHS several years to find the most suitable medications for my condition. So I have just had to accept my lot and done most treatments that have been recommended and now I am so tired with not only my disability also the Reactive Depression that I have suffered over the same given time.
Not complaining, the Staff of many clinics and Departments I have had to visit have been understanding and helped me greatly. My problem here is I moved to the far end of my County and now I am having to enter health regimes that were tried many years ago at my old address and sad to say my condition is slowly becoming more of a problem although strange to say treatments seem to be now effecting other joints so I seem to be suffering in other areas of my disability. So I suppose once they find that other areas are affected because of age that will again cause them to look at the full picture and it now concerns me that my pain medications will not be strong enough and the doses will need to be increased and because I have got used to them what is going to happen in my near future caused by age. This frightens me as now my medications can be very potent. and I have to manage my drug doses at what levels that give relief.
One good thing that the above has done is make me interested in the NHS and this helps me retain a positive outlook as I have been able to understand how the NHS works.
So now I suppose I will need to get on with my future retirement and hope beyond hope that I will be able to control my aforementioned suffering of chronic pain. We can only live for the day and have a positive outlook that amounts to an understanding of what is going on in my own body.
Life is one hard teacher and all I will do is keep, help and understand the problems associated with those patients with Mental Health disabilities and keep trying to improve all associated procedures in this extensive illness. Also help in the GP Patient Participation Group, because when you think about it this affects not only my treatments, but peoples experience of the NHS