Really struggling to come to terms with having pernicious anaemia.
Had a cold at start of year which totally wiped me out - antibiotics from dr because seemed to have gone down onto chest
Had infected sinuses in the last week which again, totally wiped me out - more antibiotics
Live in fear of being refused a B12 shot before I get to 3 months which is the regime in this country but no clear reason why the gap is 3 months (when shots first became available they were done monthly). Get too tired and can't think straight after about 2 months - only one since last shot but cold has me totally dead.
Try to keep going but it's really difficult and I've struggled with work this week. Currently 4 days a week equivalent but feeling that I only really have energy these days for equivalent of 3 days a week and can just see that getting worse and ending up not being able to work at all - and I'll just end up sitting in a stupor all the time.
Ordered some B12 spray as nasal seems to be the second best to injection but not sure that will work but need fall back plans ... or I could just give up and not do anything and just die a slow and lingering death as my nervous system breaks down and I stop being able to walk and stand and look after myself..
Can't see the point in going to doctor as chances are I'll be told I'm imagining things - which seems to be the reaction PA sufferers usually get ...and I don't feel that rational anyway.
Anniversary of my father's death tomorrow
Guess I just carry on waiting for Godot