Start of my tumour journey

[Teashop]

Hi there ,l was diagnosed with left cerebello pontine mass 22x16x16 mm in keeping with Acustic neuroma with some mass affect on brain stem in Nov 2019 after server tinnitus and sudden on set of deafness on left side,l have had hearing loss for 5 years..I attended The Walton Centre Liverpool yesterday.I was told tumour must have been there growing for many years. Surgery with complete removal of middle ear and removal of tumour , surgeon is concerned tumour is around facial nerve in which case they will graft a nerve from leg and fill behind ear the fat from middrift.has anybody else had this done.l am concerned about facial palsy,balance and coping after surgery.

[Leodo]

Hi, have not heard of this sort of diagnosis and treatment before. Is complete removal the only option? Is there possibility of gamma knife surgery? Are you suffering any symptoms of facial palsy?

[Teashop in reply to Leodo]

Hi there l was told to surgery was only option .when the op takes place l will ask if they can leave some to preserve the facial nerve but l suppose the surgeon s won't know until the process of removing beings.The op will take all day and possible in to night l have been told.

[Leodo in reply to Teashop]

My wife has had gamma knife surgery and a facial nerve transfer but did not take nerves from the leg? She also had to have a shunt fitted after the gamma knife but is doing well now 2 years on. Just ask as many questions as possible make sure you are exploring all options. Hope this helps, best of luck.

[Teashop in reply to Leodo]

Thank you for reply.l will ask many questions .glad you wife is improving