Experiences with

Acoustic neuroma

I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow

Ive had vestibular schwannoma /acoustic neuroma removed in January 2013. Until now tinnitus has always been there but suddenly more persists and occasionally the whooshing sounds.

I noticed people have mentioned difficulties driving at night .Is this another symptom of having an acoustic neuroma or just an age thing ?

Under investigation fr Acoustic Neuroma had ENT appo5 days ago hearing is fine , Dr suggested an MRI asap but I'm flying 10 hr to Mexico in 3 days . Slightly concerned as my holiday insurer will not cover me as its presently an undiagnosed condition so wondered if anyone knew if its safe to fly ??

I was diagnosed with AN 10days ago after suddenly losing my hearing in my right ear 18 months ago. I have had a long wait to see ENT specialist and originally diagnosed with otosclerosis until my MRI scan showed a 2cm AN. When the consultant told me I presumed it would be a wait and watch game but he

Hi everyone, I'm in a bit of shock, last Friday, I receive a phone call from ENT saying my MRI showed a 2.5cm acoustic neuroma was found and I've now been referred to a multi disciplinary group at the Q.E hospital.

I’m going to see a private ENT tomorrow, could I possibly have an acoustic neuroma or is it unlikely ?

hi have been diagnosed with Acoustic Neuroma July 22. On watch and wait. I am struggling with hearing aid which is new as now muffled. Is this very common can anything help? Hearing loss classed as severe to profound.

Hi I was wondering if anyone has had their Acoustic Neuroma come back? I had surgery 3 years ago and had my MRI scan 2 weeks ago. My tumor has returned. I can’t believe it. I’ve finally have felt better it has taken 3 years to get back to normal.

https://www.anausa.org/learn-about-acoustic-neuroma/video-library Whitefish xx

I have been diagnosed with an acoustic neuroma that was 1.9cm in February but didn’t receive my results until June. I have seen a neurosurgeon at royal london hospital who has advised me that i will require active treatment due to my age. Either radiotherapy or surgery.

Hi, I was diagnosed January 23, I'm waiting for my next mri which will be in June to see if there's any growth. I'm currently on watch and wait. I have really bad tinnitus, sometimes I can't hear conversations due to hearing loss and really loud tinnitus. I feel at the moment that things are never

Hello everyone. I found this forum and it looks like it could be of real help. 4 years ago my wife was diagnosed with an AN and, following 6-8 months of monitoring, was given radiotherapy (at Addenbrookes) to treat it. To cut a very long story short, she has suffered distessing symptoms ever since

Anybody else being diagnosed with cerebellar degeneration following acoustic neuroma neurosurgery? Had neurosurgery in 2018 and already some 9-10 months following surgery and rehab, my balance started worsening.

Hi, I’ve developed hearing loss/tinnitus in one ear and am waiting for an MRI to exclude an acoustic neuroma. I have mixed connective tissue disease and so one of the other possibilities is that these symptoms are due to an autimmune process. I wondered if anyone had any similar experiences?

Have been diagnosed with a large acoustic neuroma 5cm. Operation to remove it will be done 20th December so going to be a very quiet Christmas this year. I am nervous but it has to go

Me being me, I started googling the reasons for this 🫤and I now have some knowledge on Acoustic Neuroma etc. I stumbled across this site, and read through some of the posts.

I had my acoustic neuroma surgery in 2018. I have been using Hylo Forte eye drops to keep my eye moist. Surgery was performed on right side and my right eye has always been good. But from past two days that eye is constantly watering. Does anyone know why?

I've had tinnitus for many years following surgery for acoustic neuroma but 3 years ago it spiked to an unbearable level and I cant stand it any longer.

Hi I have neuroma from a neck .Please someone share an opinion, my vision is blurry, I'm tired and my nose is stuffy, can someone tell me if he had an operation??. I'm looking for information, I was diagnosed a week ago. Thank you.