Pmr flare

[Rch51020]

Hi everyone, I was diagnosed with pmr August 2019,started on 60 mgs Prednisolone.I have tapered down to 5mgs and was absolutely fine.Saw my consultant last September and he suggested to taper down 1 mg a month and hopefully I will be of predinisolone when I see him next month( he says pmr only lasts a couple of years).I took it slowly and was down to 3mgs beginning of February, on the 4th I couldn't get out of bed because of pain and stiffness in neck,shoulders,upper arms and hip thigh area.I had bloods done on the 12th and the Secretary said they are ok, I cannot drive,I don't go out and cannot even comb my hair as the symptoms don't leave me until about 3pm .Any advice,I go to see him on the 12th March

[wobblybee Administrator Pioneer]

I’m so sorry..it must be awful.

I advise asking your questions on a different Healthunlocked Forum..

healthunlocked.com/pmrgcauk

[Rch51020 in reply to wobblybee]

Thank you so much

[JoanCook]

There is a support group with a website and lots of useful information pmrgca.org.uk/

[AmberGamble in reply to JoanCook]

This is indeed a fantastic source of information and support. I have joined since my diagnosis and found it incredibly helpful.

[Bluebird444]

Hi, with my PMR my first dose was 15mg. I have had a few flares so the dose has been yoyo-ing for a couple months I am now about to come off completely. your 60mg seems extremely high! just a word of warning though be very careful when reducing, I developed secondary adrenal insufficiency and was hospitalized as a result. All better now but just be careful x

[AmberGamble in reply to Bluebird444]

I was started on 70mg! Side effects were awful. Tapering now thank goodness but I also got steroid induced hyperglycaemia which has been a real challenge 😥