Does anyone have experience with Postural Orthostatic Tachycardia Syndrome?

[Keep-The-Faith]

Does anyone have Postural Orthostatic Tachycardia Syndrome? If so what helps you, this is painful & exhausting. I'm doing salt, electrolytes, compression socks & lots of fluids, eating well like I always do. I have lots of pain & so beyond tired. I can't find a Pots specialist in my area of Northern California. I got it from having a severe infection. Thx

[Rhyothemis]

I've had dysautonomia symptoms, but I don't think it is POTS.

Bolus water drinking (drinking 500 mL water quickly) first thing in the AM might help; it is different than staying hydrated throughout the day. It increases blood pressure by increasing noradrenalin production. You might think that would be a bad thing, that it would make one feel anxious, but it doesn't for me - I actually feel pretty good from it. My dry eye goes away and I feel a bit cold. A person on another forum said that a nurse told them it would help get their bowel moving, unfortunately, it does not seem to do that for me ( I have chronic constipation; what works for me most of the time is eating lots of teff porridge).

Controlled breathing exercises might help; there are different types. I tried a few before I found one that works for me (4-7-8). Sometimes I've noticed my heart rate spiking in an unusual pattern while doing my morning HRV reading (I use EliteHRV with the CorSens finger monitor) and if I do the 4-7-8 breathing it normalizes. I don't feel my heart racing or palpitations, though.

Here's a video of Dr Andrew Weil explaining how to do 4-7-8:

youtu.be/_-C_VNM1Vd0(Not working as expected?)

I think certain antioxidant foods can help a lot with dysautonomia and post-viral syndromes generally. The purple foods especially (and red, magenta, black) - e.g., blueberries, acai, maqui, hibiscus tea, etc. - ones that anthocyanins. Broccoli sprouts are also very good (see Rhonda Patrick's videos on them).

Porcini & shiitake mushrooms can be good due to ergothioneine. Some people can't tolerate mushrooms, though, due to histamine intolerance or some have suggested the problem may be the ergothioneine itself. It's possible the beta glucans in mushrooms could be overstimulating the immune system.

Lemon balm tea is pretty powerful, but apparently you can overdose on it.

youtu.be/ogfQyU0CzRM(Not working as expected?)

Lemonade is also good. Sometimes I make a triple antioxidant tea/lemonade - lemon balm, lemon verbena, and lemon juice and slices.

I also take CoQ10, B vitamins & magnesium (and a whole bunch of other things, but I think those are the main ones for dysautonomia). There's a supplement called ParaSym Plus that was developed by Diana Driscoll, an optometrist with POTS. I have taken most of the ingredients except for the huperzine A & the choline that I used was CDP choline, not Alpha GPC. I recently dropped CDP choline since I wanted to see if I would be better without it and have not re-started yet.

[Keep-The-Faith in reply to Rhyothemis]

Lots of good information. My eyes are really starting to bother me more. I also went into Afib & was in the hospital for 5 days. Its scary & sad all at once. I will try some of these... truly appreciate your help. Also have an appointment with an endocrinologist.Thank You!

[Rhyothemis in reply to Keep-The-Faith]

You're welcome. I hope you get some relief.

There are people on the Parkinson's forum (Cure Parkinson's) who said that a maqui berry extract called MaquiBright has helped them with dry eye (people with PD can have dysautonomia symptoms); product reviews on Amazon and LEF's store site seem mixed. I've thought about trying it. I use a maqui berry powder, but of course it is not as concentrated.

healthunlocked.com/cure-par...