avelvetcrowbaravelvetcrowbar 13 minutes ago 0 Replies
Hi everyone. I feel like I'm posting so many different problems on here at the moment. I'm not overly well.
The past few years with my endometriosis and my polycystic ovaries I'd started to develop urinary issues. For years I've continuously suffered with utis, kidney infections and so on and was referred to urology after I had about 9 or 10 infections in less than a year. I ended up having a cystoscopy which was meant to rule out intersistial cystitis, I was diagnosed with an overactive bladder and put on solifenacin and amitriptyline, since the cystoscopy in particular I've been having an issue with smelling strongly of urine and my underwear is often wet even though I've been going to the toilet frequently, wiping properly and trying to go as soon as I feel the urge.
It's so embarrassing and i feel like it's just another problem for me to deal with. I'm feeling really self concious as the smell is strong and smells terribly of ammonia. I'm pretty certain I have another water infection at the moment (it's hard to always tell as it always hurts me to wee) along with fever, stomach ache, pains in my lower back but am reluctant to go back to my gp as I've been tried on so many antibiotics- some for months on end which have made no difference- which resulted in me being referred to urology in the first place.
Me and my gynecologist are wondering if my urinary issues are a result of endometriosis and I'm on the waiting list for another laparoscopy due to my endometriosis getting more severe but at the moment it's the urinary issues that are really dominating my life.
I get up every night to wee, I've been drinking filtered water, trying to cut out caffeine and such but it just seems to be worsening. I can't necessarily feel myself leaking-I'm certain it happens most at night whilst I'm asleep but no matter what my pants are always wet and I smell strongly of wee.
I'm 24 and not overly overweight. I was about 12 stone when I last weighed myself although I've been walking twice daily and might have lost a little weight over the past 2 months.
I feel really awful about myself and pretty embarrassed that this is happening constantly. I'm due to go back to my final year at university doing my degree and my urinary issues really have a profound effect on my concentration.
Does anyone have any advice on what I can do? Solifenacin has helped with the amount of times I urinate but it feels like I've hit a wall in terms of anything making a difference.
Any help/advice would be brilliant
Sorry for the long post.
Jordan-Melissa
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In the past I've had loads of urinary infections, urine tests failed to find infection and a cystoscopy couldn't find a cause, but it did leave me with the most horrendous infection which needed antibiotics. I don't have endometriosis but I do have adhesions around my ovaries. When I'm away from home I prefer to know where the locations of toilets are.
High temperature (38 and above) after cystoscopy can indicate infection, particularly if pain is involved.
It is possible for endometriosis to cause bladder problems.
The problem of leaking urine may be solved with simple exercises ( I have heard of a device used internally that's proved helpful with this).
Ketones, by products of certain foods ( e.g. asparagus), vitamins, nitrates and phosphates can all cause odour in urine.
Sometimes it's difficult to tell where the odour is actually coming from, bladder (I know you mentioned ammonia) or vagina. Two vaginal infections can effect odour and they can easily be cleared up by antibiotics.
After coping with all these problems for a number of years you're probably aware of everything I've mentioned. I'm sorry not to be able to say anything more constructive,
probably the best help in moving forward will be from your gynaecologist.
Adhesions can cause all sorts of problems in the weirdest places
endo-resolved.com/symptoms shows a diagram.
You won't want to for obvious reasons but try to drink a reasonable amount of water.
Avelvetcrowbar, have a look at the Tena products which may help you cope with leaks until the problem is sorted out tena.co.uk/women/product-in...
hi hun am glad I saw your post because me too am similar I had endometriosis too I had to have a full hysterectomy last year and ever since I always trickle and I cant even laugh cos I trickle more .few years ago I went on trampoline with friends and I bounced about 3 times then I sudden felt like I was gonna wet myself so I think its been going on longer than I thought I thought was just a fact of life or cos iv had 5 children ,my pants are always a little wet I use tena pads to be safe xiv not been doctors as like I said I thought was just cos I had 5 kids x
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