Hi all,dont want to bring anyones mood down but I am having a really low day. I have a problem called Sjorgens that makes my mouth and eyes really dry and Addisons that makes me crave salt it's a nightmare!
I have got into the habit of constantly sucking sweets to produce saliva but I realise that's a lot of sugar. I have tried to chew gum but that just dries really quickly.
I dont suppose anyone had had a similar obstacle?
I am disappointed in myself as this is really a habit I want to get rid of.
CautiousK
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CautiousK
7lbs
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There are also products you can buy from pharmacies that may help to keep your mouth moist, known as saliva substitutes.
There are several different types available, including sprays, lozenges (medicated sweets) and gels. You may need to try a few types to find one that works for you.
Hi yes I do, I was tested for sjogrens but it was inconclusive - I have the atrophied salivary glands but eyes are fine and joints only normal wear and tear for my age. I was offered artificial saliva, I don’t know if your doctor has mentioned this to you? I didn’t fancy it to be honest. Sugar makes my saliva thicker and gives me a very sore mouth. I did try the sugar free sweets but they taste horrible and also have a very laxative effect! I do sometimes have trouble swallowing, especially starchy foods due to lack of amylase, but I don't eat a lot of starch. I always have a drink to sip with food, I find always having a source of fat with a meals helps, and sauces. Whilst writing this I’m eating salmon and veg with a sauce I made from full fat Greek yoghurt with lemon juice, black pepper and chives which is yummy and helps the food go down. Hope this might help? 😀
Ah, I see I’ve been given a restart badge, thank you TeamAdmin ! I haven't been around here for a while but I actually lost 2 stone last year, just gained a couple of lockdown pounds back. Have one stone left to lose. 😀
I have the symptoms of sjogren's but haven’t been able to be tested due to covid and my gp is useless. But I know that’s what I have. I find sunlight make my symptoms 100% worse so using sunscream, sun hat or just staying indoors really helps. There are these omega 7 with sea buckthorn tablets on Holland and Barrett that are expensive but really help. And eating juicy fruit like grapes and watermelon help more than drinking water. Have you been tested for diabetes insipidus as my gp thought I might have this (symptoms are really similar and is common with people with addisons) hope this helps. Just to say I’m no expert I got my diagnosis from watching House!
I had the dry eye test , where the put small cotton buds in the corners of your eyes for 5 minutes.
I will certainly look for those vitamins.
I asked on here before I googled as I tend to get bogged down with reviews and can never decide and I know that speaking to people with similar symptoms is the best way for me to find what will suit me.
Yes I get dry mouth at night and I am using Solugren to produce saliva. At night I have to tape my mouth shut so that I breath through my nose otherwise I get ulcess and my throat really hurts. Not sure if is the meds I take! Also your doctor could give you a tablet which helps procude saliva. There are other products as well ask in your pharmacy.
Sorry I haven't got anything to suggest, but if you go for sugar free sweets, be cautious. Sorbitol (in Polos and lots of others) will act as a powerful laxative if you eat too many. I believe xylitol is similar.
In fact, if you try any sugar free sweets, use them at home until you find out how your body responds.
I don't know if this helps, but I used to buy my daughter Biotene mouthwash and toothpaste, when she had a dry mouth; she said that the toothpaste really helped.
We bought it in Walmart, and, after just checking, we've found it for sale at Amazon UK...it's not expensive.
Also forgot to say before, my dr advised to keep well hydrated throughout the day, if you’re dehydrated saliva will be thicker and harder to move along damaged ducts.
I totally understand your concern over this issue as I had to have emergency oral surgery a couple of years ago to remove my stony saliva which blocked the duct causing extreme swelling of accumulated saliva and unbearable pain. The Doctors advised me to always drink sips of water throughout the day and chew gums. I find the latter socially unacceptable.
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Low carb ideas please? 🤞
Night snacker!
Back again! 
A good shake up needed ...
