Asking for a friend

[KS_21]

So I found out yesterday that’s I had PCOS

Just wanting to know how people felt when they found out and how badly it effected them, as I’m really struggling with it and can’t stop breaking down about it!

[Bluelady-sing]

Hi

How old are you, I am 44 with pcos, I was upset at first, the hair is big issue at moment I just had day 21 bloods

[KS_21]

See I have very bad hair loss which is really damaging me and also me and my partner have been trying for a kid and no luck! And I’m 21

[Kimmy2002]

The uncertainty and shock can be combated with knowledge and time. Pcos has no cure but it has a lot of treatments you need to do your research. Google Pinterest or a professional PCOS nutritionist all things I have done. All things the doctors gave zero help to do but I wish I had done it ten years ago. I have server pcos, I developed diabetes type2 I have lost so much hair on my head I wear a wig.. I was so large weight wise it was affecting my knees and joints.. I have been trying for a baby for 12 years the list continues, now I lost 4 stone my hair is coming back (slowly) I have very little facial hair now I feel heathy full of energy and like I can do anything and I had conformation of ovulation 2 months in a row... the change is now I understand my issues and I’m treating them ! I do have a nutritionist but that’s the last 3 months I started doing my research and changing my diet over 2 years ago. I eat gluten and lacto free, minimal carbs (no simple carbs bread, rice, pasta, white potato) I eat buckwheat, quino, swede, sweet potato, butternut squash... and mostImportantly I cut as much sugar out of my diet as possible. It’s basically your new enemy.. unused carbs simple carbs even more so turn to sugar in your body when not used so that why they are dangerous as they are secret sugars! A super quick explanation before you go and do your own research.. pcos causes insulin resistance (too much unused sugar in your body ), to combat having to much insulin in tour body makes additional testosterone.. then the much higher level of testosterone causes hairy face, chest back.. causes you not

To ovulate in most cases making having children more difficult and male

Patter hair loss so bold top of the head and crown. That’s super simple way there are lots of other issues but it’s a good starting point. So why gluten free and lacto free.. pcos

Also causes inflammation of the gut this is why so many ladies get diagnosed as having IBS most don’t it’s lazy doctors.. the inflammation makes like hard it affects your fatigue levels, confidence as your constantly worried about needing the loo among other things. Going gluten free and lacto/dairy free helped me massively.. then and maybe most importantly supplements as a lady with pcos you most don’t know but Your body will be lacking in certain things so Inositol is a must what ever other supplements you take this must be number one.. this is all my own research the expense of a pcos nutritionist and years of finding what works for me every one is different but don’t be worried or shook so the research and take control! Good luck

[Bluepenguin22]

For reference I'm 18 and I got diagnoses when I was 16. And at first I took it really really hard. I had break downs all the time. It was really hard coming to terms with the fact that this was something I was going to have to live with for the rest of my life. Being honest the first year was really hard. You have to adjust to taking medication and me personally I had a lot of issues with my medication at first. I take metformin and it used to make me throw up all the time, I don't have this issue anymore though. I also want to say that it gets easier. Eventually you won't think about it as much and it won't be such a big thing luming over you all the time. It will always be a part of you bit it wont define you. When I first got diagnosed it was literally all I could think about everytime I took my medicine it felt like a constent reminder but now it's just a normal thing for me. I really hope that this helps gives you some peace of mind and that you know that it really does get easier.

[LisaEB]

What are you worried about? I personally wasn't worried at all but I wasn't sure if I wanted children, I was diagnosed at about 25 and was more interested in enjoying life. Its not a death sentence and many of the negative effects of it, there are pills and ways to make things better. E.g hairless, laser is an option, I was on the pill many years and that's supposed to help symptoms although has its own after effects, fertility there is instoil, fertility drugs and IVF if you were to struggle and adoption and fostering are also options,metformin is given to help loose weight and also help fertility I believe. Life is to short to worry about these things that you can't fully control, tackle everything one at a time.