Hi

[Amelia2018]

Hi all , how do you get a proper diagnosed of PCOS? I’ve obviously had a couple of scans internal as well but they said my insides are fine , according to my Doctors I’ve got pcos but all my scans are fine and I get pain now and again but since I’ve stared these tablets again I haven’t had much pain , what shall I do?

[Amyjane88]

Hi I found out when I was 18. I am now 29. I had scans and hormone levels tested and both came back for pcos. Hope this helps xx

[Amelia2018 in reply to Amyjane88]

Thankyou , I’ve had blood tests for my hormones nothing came back for pcos and my scans haven’t either , iam having surgery in a couple of months to see why iam in pain but they put me on Norethisterone to force a period because I hadn’t had one for 2 months since the implant was removed but they said my lining of my womb could be shredded but I wouldn’t bleed if it was would I?xxx

[Amyjane88 in reply to Amelia2018]

You poor thing . Sorry I can not say anything more helpful. I wish you the best of luck and hope they get to the bottom of it for you. Take care xx

[Amelia2018 in reply to Amyjane88]

Yeah me too tbh , just want to be pregnant again but having no luck and they said that Norethisterone would help me but people have said it will someone got pregnant while taking it and others said it won’t xx

[Vonnah]

Hmm....i see you keep mentioning pain, do you have endometriosis? And i had blood work done from my general primary doctor and my testosterone level was high and was referred to a specialist then my endocrinologist looked at my abnormal hairs on my body and with me explaining about my absent periods she went on and diagnosed me then set up a ultrasound appointment. Later on my gynecologist said i had one small cyst on my ovary (which was hard to believe i did have more!) oh and she obviously saw how horrifying my acne on my face was.

So that is pretty much how you should get diagnosed based on hormone levels, acne, absent or abnormal periods, and abmormal facial and body hair.

I was diagnosed when i was 19 and now I'm 20 so i am still learning about PCOS. I believe I've had it longer though without being properly diagnosed because i had irregular and absent periods since 12 or 13 years old i think.

[Amelia2018 in reply to Vonnah]

Yeah always in pain , no I don’t I don’t think Hun! Still under investigation they’ve said , iam ringing gynaecology in the morning early in morning to see what they say I just feel so rubbish I can’t sleep again tonight this is the 3rd night I haven’t slept x

[Vonnah in reply to Amelia2018]

Wow that is terrifying. I hope those problems get resolved. Doctors better take good care of you!!!!

[Amelia2018 in reply to Vonnah]

They don’t even think I’ve got pcos I’ve got the signs but they’ve said iam apparently fine! I’ve had a hot water bottle on me for the last 2 hours my pain gets worse on a night but hospital don’t even see that or understand x

[Amelia2018 in reply to Amelia2018]

Yeah I know Hun message me x

[Vonnah in reply to Amelia2018]

Docs aren't apparently educated! I'm sorry😔

[Amelia2018 in reply to Vonnah]

I know and don’t be sorry 😔 xx