blurry vision, jaw/nose/facial pain. Was on high dose pred, now on 10mg pred and just increased MTX to 25mg. I don't have a diagnosis other than " something auto immune ". My ESR and CRP are moderately raised, ANCA is negative. I have attended the vasculitis clinic in Aberdeen once. I was told there that they couldn't say if it was or wasn't vasculitis and because I have no end organ damage I was in a wait and see category.
My symptoms were starting to settle with the MTX although I noticed I was becoming symptomatic again 2 days before the MTX was due. I have been off work for 8 months ( I work in intensive care doing 12.5 hr shifts ) and am hoping to get back to work soon.
Unfortunately the past 4 days have been terrible. My facial pain is as bad as ever, especially my nose. My lips feel a little numb and my sense of taste has gone. My forehead is pounding. I am having to put up with the pain because no analgesia is effective ( have tried Tramadol, co Codamol 30/500, dihydrocodeine, paracetamol ). Am feeling very down as I felt I was making progress but now feeling as bad as ever.
Any suggestions anyone? I suspect I am just needing virtual cuddles!