Sunday afternoon I started to feel a little unwell, a little achey and a headache looming. I thought here goes I have picked up a bug and as usual its wiping me out. At about 9pm I felt terrible I could hardly keep my eyes open and the pain in my hands became severe. This is when I strated to think my MPA was on the war path and I had not felt like this since I was diagnosed. Took my evening medication and at about 10:30 thought I had better take to my bed. Easier said than done as by now I was in so much pain with my feet and legs I could hardly walk. I felt a little scared at this point the only thing I would be able to do if things got any worse was A/E at St James Leeds!! a trip I did not want to make unless I was
desperate although I was getting to that point.
I do not know yet what made me go to the cupboard and look at my dosette boxes, never know but someone whispered in my ear. There they were my morning cocktail of drugs. Pred, azath, everything that keeps this bloody illness at bay!!. I HAD FORGOTTEN THEM
I had never in the 4 years since diagnisis had I done this, and I can tell you I will never ever do it again. I took the meds and round about 5am started to feel human again. I really cant believe that these pills prevent so much pain and suffering. Goodness knows how patients went on 20 years ago when these drugs were not around.I am forever being told by my consultant that there was nothing that could be done for them. Hopefully sometime in the future someone will say its a good job I got this now and and not 20 years ago at least by then there may be a complete cure.