I have received an email this morning asking me about counselling. This person has been diagnosed for about a year and has received the sledge hammer treatment of infusions of cylophos and Prednisolone and is now on maintenance medication. The problems are ... :- finding it very difficult to come to terms with actually having Vasculitis themselves plus coping with the extended family and friends not understanding why he looks so well now. It would seem the family have gone from worrying so much about him at the beginning when he was so obviously unwell and in hospital to thinking he is fine now. His wife says the extended family do not see him taking his cocktail of drugs every day. They both want to know if counselling may help, I have experience of councelling many years ago but that was quite a different situation. I just thought I would ask has anyone found counselling helpful after they were diagnosed with Vasculitis and if so would the counsellor really have to be knowledgeable about vasculitis (rare diseases) to be able to help.
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