Change of diagnosis. I was diagnosed with mononeuritis multiplex, secondary to vasculitis in 2015. I was on long term steroids followed by two years on mmf. With some symptoms still remaining I have been referred to another hospital where they are discussing whether I have CIPD, but am a bit of an enigma as not all tests etc point to any one thing! Has anyone ever had dealings with CIPD? Thanks
Anyone know about CIPD: Change of diagnosis. I... - Vasculitis UK
Anyone know about CIPD
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linjoyfrench
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Sorry, finger slip! CIDP
Yes Ihave had CIDP Since 2016. I also haveMGUS, adervitive of Cidp. I use the term
Peripheal neuropathy as more people know of it. I live in Portugal which has made tratment more complicated.Your two years on steroids should have given some help I would hope.
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