Renal Diet Confusion: Hello, apologies if this... - Vasculitis UK

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Renal Diet Confusion

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8 Replies

Hello, apologies if this may be repetitive in the Group but I'm now about 3 months into my renal limited vasculitis diagnosis and one of the areas I find mind boggling is that of proper dieting. There is no shortage of information out there but a lot of it seems to conflict. Would be grateful if anyone has any sources that they have found particularly useful, with good results and which are fairly consistent across alternative sources. Thank you!

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8 Replies
Main1234 profile image
Main1234

hi sorry you have been recently diagnosed but welcome to the group.

When you mean “proper” diet do you mean for your kidneys ? If so the support information from Kidney uK gives excellent advice on diet etc.

Have you accessed the FB page for vasculitis, lots of support from people who are going through the same.

Wishing you well, I’m sure people will post who are coping with kidney involvement to offer their advice/support.

Support_helps profile image
Support_helps in reply to Main1234

Yes thank you kidney diet, I will check out Kidney OK//🙂

AmyS1 profile image
AmyS1

Hello the best and most professional advice for renal diets is a registered dietitian, registered with HCPC.Your renal specialist nurse should be able to put you in contact

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Support_helps in reply to AmyS1

That sounds good let me do so thank you!

eh66 profile image
eh66

To add to the good advice that has already been said, as someone who had kidney involvement and is now in remission with average kidney function my age, I avoid ultra-processed foods which often have inflammatory effects, and the converse of that is my diet consists of a lot of whole foods, nuts, fruits and vegetables with plenty of fibre , which generally have anti-inflammatory properties. A qualified dietician will be able to advise you on what's best for your specific condition.

Home mixed nuts; walnuts, brazils, almonds, hazel, cashew , red peanuts, pumpkin seeds
Support_helps profile image
Support_helps in reply to eh66

Thank you very much, I was wondering about nuts because of the relatively high protein content and the fact that I am trying to get my good fats from virgin olive oil. I find my protein limit gets taken up very quickly and that is definitely a pain point at the moment. I am totally off processed foods, gave up alcohol which was really really tough, low sodium and limited to 2.5L water per day. I can take this up by 0.5L if I do heavy cardio. The dietary and lifestyle change has been extremely challenging to say the least. I am happy you seem to have found your solution, congrats!

eh66 profile image
eh66

That is a pretty tough situation. In your case nuts could be problematic, but olive oil has a lot of benefits. It sounds like you really need to get on board with good dietician.

Support_helps profile image
Support_helps in reply to eh66

Yes right now my nephrologist is advising me but I will ask him about a licensed dietician, thank you again.

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