To everyone who replied to me on the End of the Rope healthunlocked.com/vasculit... --THANK YOU! I crawled out of darkness to live another day, another week... Hugs to you all !
You all made me feel a little better and helped me make it through the next few days. I'm glad for this community and the support. I hope we can all help one another, in one way or another.
For anyone that is in the US, I've found a resource called AARDA: American Autoimmune Related Diseases Association aarda.org
They don't seem to have a great chat forum as this one, but they did send me a nice informative packet, pamphlets on How to get a Diagnosis, How to ask the Right Questions... stuff that is handy and in spite of my years of web-surfing our special autoimmune subtype, I learned some things. Hope some can find this site useful.
~G
How many years have you got vasculitis?
What do you think are the unmet needs in Vasculitis? 
How do you know when to increase or decrease your steroids?
It's hard to stay upbeat when you no longer get invited to the party
