To everyone who replied to me on the End of the Rope healthunlocked.com/vasculit... --THANK YOU! I crawled out of darkness to live another day, another week... Hugs to you all !
You all made me feel a little better and helped me make it through the next few days. I'm glad for this community and the support. I hope we can all help one another, in one way or another.
For anyone that is in the US, I've found a resource called AARDA: American Autoimmune Related Diseases Association aarda.org
They don't seem to have a great chat forum as this one, but they did send me a nice informative packet, pamphlets on How to get a Diagnosis, How to ask the Right Questions... stuff that is handy and in spite of my years of web-surfing our special autoimmune subtype, I learned some things. Hope some can find this site useful.
~G
'Cause for your Vasculitis' poll is unfair.
Trying to connect the dots
"It's only bits mum" 
Diet and Autoimmune Conditions - can you heal your body through diet?
Vasculitis (Churg-Strauss Syndrome) - my story so far .. 11 weeks on
