On June 2015 I only had days to live my kidneys where at 6%
I was send to hospital in Letterkenny Donegal IRELAND,
After blood tests in A&E I was rushed into tensive care
I was rushed by ambulance to beaumont hospital Dublin
Where the consultant and team was waiting for me coming in the hospital was taken into a room laying on my stomach he done test on my kidneys where he told me I was a very lucky man my kidneys where big if they were small I would of been in trouble .
I was diagnosed with Anca vasculitis I was on plasma and dialysis and put on three chemo tablets and steroids .
The steroids blew me up and one thing I never liked was the Catheter bag For my kidneys nothing else bothered me.
Had Constant pain in my head Side-effect Of pink stuff the renal nurses cleaned my Catheter in my chest when I coped on about it they started using Brown stuff after a while my head wasn’t as sore.
and Constant pain and pressure in my eyes it was side-effect of steroids a hole two years.
I was then taken back to Letterkenny hospital a week a few days,
After a week or two they had to take me off chemo tablets as it affected my bone marrow and liver big time I was lucky it came back to normal.
I was put on a tablet called Immune I wasn’t on it very long as I took a side-effect to it my skin came out on a rash I was very sick in hospital over two weeks.
I was only on dialysis for only 6 months I was very lucky.
A few weeks later I got a phone call from hospital to come out
I was in great form I was told I had to go back on tablets which I did not hear right so I was told to start the tablets that night at 8pm.
When I left the hospital I went with my sister to shops and had my dinner came home and took the tablets at 8pm by 11 that night I was very sick i ended back in hospital in coronary care with an regular heartbeat and was on dialysis for a few days,
My consultant came and held my hand and promised me that they would never do that again to me and that she was in contact with a specialist consultant in Dublin and he give me a tablet called myfenax a organ rejection medication ,
The side-effect is skin cancer I had pre- cancers on my cheek twice last year and this year.
Talking about side-effects my legs where damaged by chemo tablets a few days after I came back from Dublin I couldn’t Walk Right only steps was told it might come back but it now won’t but I don’t let it bother me never did or my illness as well u can’t be childish u have to fight always think positive .
Since the first of January this year I was taken of steroids it Affected My hip and back.
I had my hospital appointment with my Consultant And was told I lost three stone since Christmas and I was also told that there is no sign of Anca vasculitis my kidneys are at 27 normal person is 100 and she said I am taking u off myfenx tablets for Anca vascultis and when I come back in three months in October off all together,
I think myself if it doesn’t come back in a year I’ll get the all clear
My own doctor said to me not necessary A year to wait all clear so I am just waiting for the two Magic works “All Clear”
My consultant told me now go out the door smile positive your getting better.
I am so lucky to have great doctors & nurses,
I will inform u all when I get them two words all clear !!
Is it Vasculitis?
How high is high with an ANCA result?
Chronic fatigue
Has anyone with GPA - vasculitis gotten their kidneys back?
