I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admitted to hospital with kidney failure, we embarked on the most horrendous journey of our lives, dad was given dialysis and then started on plasma exchange. He seemed to be doing much better until they gave him his first full dose of cyclophosphamide when he had a really awful reaction which let him to needing life support in intensive care, which took nearly 2 weeks to wake him up from.
The hospital gave him his second but lesser dose of cyclophosphamide whilst an inpatient and which he tolerate well and after 8 long weeks we have him home.
I look him yesterday for his 3rd infusion and yesterday he seemed fine but today he has slept pretty much the whole day and when he is awake he says his head is aching and feels really hot, is this normal? I could just be being a very over protective daughter but I never want to go through that awful phone call in the night from a hospital saying you need to be here your dads very poorly.
Oh and one other thing his feet are very swollen even though he’s keeping them raised.
Sorry for the long message
Any reassurance that I’m just being over protective would be great