Low dose naltrexone..: Hi everyone.. Went to... - Vasculitis UK

Vasculitis UK

7,939 members6,973 posts

Low dose naltrexone..

judyann profile image
4 Replies

Hi everyone.. Went to the doctor yesterday and put me back on prednisone and wants me to try low dose naltrexone.. She said that will replace the prednisone. I was going to take methotrexate.. Is this better? Has anyone had good results with it? Thanks for any help with this...

Written by
judyann profile image
judyann
To view profiles and participate in discussions please or .
Read more about...
4 Replies
2534 profile image
2534

Interesting! I also have erythromelalgia (secondary to Rheumatoid Arthritis and vasculitis) and the patient chat room was talking about low dose Naltrexone and how it helped them. Is it a consultant giving it to you or your GP? my GP did not feel she was able to give it.

Do let us know how you get on and good luck!

judyann profile image
judyann in reply to2534

Hi. My neurologist is helping me and put me back on steroids and said this would replace them. I have to make an appointment with a new rheumy. I don't know what they will want.

There is no evidence that I am aware of in support of low dose naltrexone as a treatment for Vasculitis or any other auto immune disease.

jinasc profile image
jinasc

LDN, is licensed for use in MS in the UK.

You can put Low Dose Natrexolone in your search engine and read up about it. It was developed in the states at Stanford University Research dept and it was originally developed for HIV. It a very good read.

Not what you're looking for?

You may also like...

Tingling feet and ANCA

Had GCA in 2015 and on prednisone for 4 years…then no relapse but diagnosed with PMR in Dec. 2021....
GinnyMa profile image

Night sweats after stopping Prednisone

My finance was diagnosed with ANCA vasculitis MPA March of 2014. Needless to say he was on many...

Bloating and water retention from prednisone, I need some help with How to get rid of the symptoms

I have severe bloating and water retention from 80mg a day of prednisone . And I just need to know...
Love-wins profile image

Son with Vasculiti Anca Associata with renal involvement

Hi I write from north of Italy. In March of this year the doctor told us that my son, who is 11...
Wizzi profile image

Vasculitis and physical exercise

Hi, I was diagnosed with Vasculitis (Wegener's granulomatosis) before 30 days. I was reading...

Moderation team

See all
zoe69 profile image
zoe69Administrator
Allotmental profile image
AllotmentalAdministrator
JaneLE profile image
JaneLEAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.