Bloating and water retention from prednisone, I need some help with How to get rid of the symptoms

[Love-wins]

I have severe bloating and water retention from 80mg a day of prednisone . And I just need to know how to get some relief? I’ve never had it affect me quite this bad. And I’m peeing tons every hour. Still miserable. I literally look and feel 9 months pregnant . And can barely move. My tummy just keeps growing. And is so hard. Like it’s literally full of air n water. Tonight I have been peeing 3 minutes an hour all night. Still so uncomfortable. I take the prednisone for my lungs. As I get sick a lot.

[Theidealistrealist]

I drank quite a bit of coconut water, the high potassium content helps with water retention. Magnesium rich foods also help. Bananas are another win. I also really cut down on salt which is key to stopping water retention.

I did switch from tablets to injections which helped alot. I'm back on tablets now but I just chew up the tablet in my mouth - obviously not feasible with 80mg. But I found the tablets were upsetting my stomach and bloating it out as they fizzed up inside.

Finally, I went for some abdominal massages which helped move things round quite a bit.

[Love-wins in reply to Theidealistrealist]

Thank you so much I’ll try anything lol. They also just changed my meds again. So I’m hoping it helps.

[rrahman]

Hi love wins!

When I was on that dosage it was difficult because I also weighed and felt heavy too , but I soon learnt the trick was to sweat it out. Either excercise to maybe sauna/steam. But it didn’t matter how many times I went to the toilet I’d still feel big bloated and heavy. It was only when I googled something I realised sweating was the trick.

Hope it helps. Whatver works for you but you just need to release it from your system.

[AmyS1]

Talk to your vasculitis nurse. Try to reduce your prednisolone with the help of your Dr. Maybe you have steroid induced diabetes seek help.

[Love-wins in reply to AmyS1]

They just started a taper and changed my antibiotics to levequin so maybe this will finally do the trick. Thanks so much

[AmyS1]

Nb are you being seen at a specialist vasculitis clinic? It makes an enormous difference.

[michichgo]

Hello Love Wins.

I have no suggestions but just wanted to let you know I'm sending good healing vibes your way, along with sunshiney thoughts and gentle hugs.

Best wishes for a bit of relief.

Your vasci peep,

Michele

[loisbrucie]

I recommend you measure how much urine output you have in 24 hours. If it is more than 3 litres ( mine was 6 litres) see your GP . You could have diabetes insipidus.- Or steroid induced Diabetes Melitious.

You have an auto immune disease, very similar to mine. I was bed/ couch bound for a year , no energy weak as a kitten , but weighing 15 stone, on high dose prednisone . I used the Functional elimination diet to cut out inflammatory foods. Then carefully reintroduce them to find out what had caused the problem, it is different for different people, ( on the second day of the diet my pain went ) . I used a private Functional doctor who first sorted out my hormone problem , with a battery of tests supplements and T3. Then she sorted my Rheumatoid Arthritis and a my very virulent vasculitis disease with this diet. The senior of my 5 NHS consultants agrees that this diet worked, where my chemo and autoimmune therapy had failed. The book the autoimmune solution by Dr Amy Myers I found to be a great help..

I was prescribed

*Get regular 8 hours sleep, two hours before midnight

*Drink lots of filtered water.

*Cut out chemicals in your personal care and environment.

*Supplement, magnesium , vit c, vit B 12, vit D,...

*Add magnesium crystals to your bath.

*Take saunas when possible to detox .

Follow Functional exclusion diet for 2 weeks .

Exclude

* All types of dairy ( cows, goats, sheep’s , milk, yogurt, cheese )

All grains,( wheat , corn, oats, rye barley etc)

All sugars.

All sweeteners chemicals and additives

Soya

Lectins- beans peas lentils

Nightshades - potatoes, aubergines, peppers

All high glycemic fruit

This will leave you with meat (grass fed where possible ), fish, vegetables and berries .

Try to eat organic food.

It was tough, but a year on I’m used to it . I’m now 10 stone and able to swim and play with my grandchildren again.

Best of luck.

[Paprika60 in reply to loisbrucie]

I read your post with great interest. I too tried Functional Diet doctor in my local area in London and got on what seemed like a Paleo diet for 6 months some years ago. I also read The Immune System Recovery Plan by Dr. Susan. Blum. I think everybody reacts differently and great to hear that you have improved your health so much. However, I didn't notice much difference except learning to watch my diet much more carefully. In the long run I found my diet becoming somewhat repetitive and boringly limited. Also I felt my adviser was keen on getting me to order supplements (mostly American imports) which amounted to over £300 every time (I learned that she got commission from each purchase). I discontinued seeing her and although I watch my diet and eat organic produce fresh from farmers except when I dine out, I feel cutting out beans and oats made no difference in my condition. I try to balance my diet and use my common sense.

I guess your functional doctor is excellent and that makes a big difference and also you are lucky to have a great will power.

[asilanna]

Horrible side effect of pred.get a blood sugar test because pred can make you diabetic and peeing is a sign when I get it.the diabetes goes when u get off pred so dont be alarmed but go to docs and get them to test it.also metformin which you take for diabetes reduces the fat around our tummies. I did a drug trial for this and that was the outcome .I learnt that pred which is a hormone distributed sugar and fat in a diff way than our Normal bodies which is around 7 on the diabetes gauge.good luck