Our next Meeting is on Friday 9th December in the Linda McCartney Education Centre (Room 4) at the Royal Liverpool UV Hospital from 12-2pm followed by our usual Xmas buffet.
Please contact me or Keith if you wish to attend and haven't notified us already.
Sue
Hi Sue,
I'm 2 years into Wegeners and would like a bit of advice/support. I've only just found you!
Regards
Hi Reidy I have WG as well. I was diagnosed 12 years ago. Where do you live & where are you treated? What treatment are you having at the moment? If there is something specific you want to ask, let me know.If you can come to our meeting, we can give you leaflets & have a chat. It can be a long road with this illness & it's hard when no-one has heard of it because it's rare.
Best wishes Sue
Currently on Prednisone and AZATHIOPRINE along with various blood pressure meds. Being treated at the Royal renal unit. I live in Prescot.
I've nothing specific to ask, I'm just having difficulty adapting to my 'new normal'.
If I may I will try to attend the meeting.
Mike R
Hi Mike if you want to ring or meet, I am happy to do so. There are 3 of us who help to run the Support Group at the hospital. Dave, Keith & me. Dave & Keith live nearby & I live in Chester. Most of the people who come to the meetings are treated at the Royal. Dr Harper & Sarah are very good. Most people with WG end up on Prednisolone and an immuno suppressant like Azathioprine. I assume that you are in remission. It's hard to deal with the effects of the illness but things do improve slowly but coming to terms with it all takes a while. My number is 07929738947
Best wishes Sue
North West Vascilitus Support Meeting
NEW VASCULITIS SUPPORT GROUP, SOUTH WALES.
First Meeting 24th June 2012.
North east specialist Wegeners/GPA??
South East London North West Kent Vasculitis Support Group Meeting Saturday January 19th.South East London/ North West Kent Vasculitis Support Group Meeting February 23rd 2013.
