Post for some "members" of Vasculitis UK. Re... - Vasculitis UK

Vasculitis UK

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Post for some "members" of Vasculitis UK. Reminders about the Oxford Research Questionnaire which was sent out 3 weeks ago.

Suzym2u profile image
Suzym2uModerator

There will be over 300 reminders being posted today from Vasculitis UK, regarding the research questionnaire from Oxford.

Enclosed, in the reminder, will be a stamped addressed envelope.

If you receive a reminder about the questionnaire, please can you complete your questionnaire and return it, in the stamped addressed envelope.

More than 600 were posted 3 weeks ago, Just under 300 have been returned, thank you so much to those who have returned them. :-)

Jo, at Oxford, would like as many of the remaining 300 returning as soon as possible please.

This research allows the patient view to be taken into account and can help to guide priorities in the future care and treatment of Vasculitis. This is a chance to tell the doctors how it really is to live with Vasculitis.

Thank you

Susan

24 Replies

Sorry Susan. This is something I've not got around to yet, but not forgotten!

LynneJ profile image
LynneJVasculitis UK

Have returned it so no need to waste postage. Thanks. Hope it is a success.

I returned mine the same day, I knew if I didn't I would forget.

Suzym2u profile image
Suzym2uModerator

Thank you, :-) John and Dr Jo have worked so hard to make this happen and they would certainly appreciate the support. :-)

Susan

Not received - should I have received one?

Suzym2u profile image
Suzym2uModerator in reply to shella

not everyone did, only 600 were sent out, VUK have over 1000 members

Susan

I didn, receive one either.!!

Suzym2u profile image
Suzym2uModerator

Only if you are member of VUK plus only 600 were sent out, VUK have about 1000 members. :-)

Susan

Hi Susan I returned mine a couple of days after I received it.

Thank you .

I haven't got one yet-but I'm sure that I did 'sign up' for this Susan. Can you check, for me, please? If not can you get me signed up?

AndrewT

Same as Andrew for me Susan please.

hamble99b profile image
hamble99bVolunteer in reply to jackrussell

add me too please.

Suzym2u profile image
Suzym2uModerator

There are over 1000 members of VUK, 600 questionnaires were sent out, so not everyone, will have received one. So do not worry if you did not receive one this time, there will be others in the future :-)

Hidden profile image
Hidden

Whereabouts in Oxford?

Suzym2u profile image
Suzym2uModerator in reply to Hidden

The hospital

That was a questionnaire for ANCA V. Mine has not been classified hence I did not return.

Suzym2u profile image
Suzym2uModerator in reply to lancrose

if you received a questionnaire please answer it

thank you

Susan

Sent mine this week, sorry for the delay.

Posted back a few days after receiving it.

Thought the form wanted only patients with anca vasculitis. sorry if I am confused as always.. Mind you, the list covered most of my symptoms. Odd..

Suzym2u profile image
Suzym2uModerator in reply to lancrose

I am pretty sure if you received a questionnaire they really would like you to complete it, if that's ok

Susan

No problem, Susan. Will do. Thank you.

I would have to mention on the form that I'm currently under "V NOS". Thank you for your brilliant project. I'm assuming that your organisation is funding the research.

Suzym2u profile image
Suzym2uModerator in reply to lancrose

VUK not only fund research but also support research in other ways too. Supporting doctors taking part in research funded by the NIHR or other organisations too, either by sharing questionnaires or taking part in clinical practical research, such as the research project "Fatigue and Vasculitis" at Birmingham in 2012. :-) vasculitis.org.uk/research/...

vasculitis.org.uk/research/...

vasculitis.org.uk/news/supp...

Thank you, Susan. Returned!!! :) PS I never received my Reminder though?

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