I was diagnosed with WG over 17 years ago with Saddle nose deformity and I have chronic kidney failure too. I have been receiving Rituximab every 6 months for the last few years and have been lucky not to have had steroids for approx the last 10 years. I'm 55 years old.
Since my last infusion in October, when I had a chest infection I have been experiencing increasing breathlessness on exertion and swelling of my hands and feet.
Today I attended a cardiac appointment to be told it looks like I have left sided heart failure Due to the Vasculitis !!!
Has anyone else been diagnosed with this or heart failure please ? What treatment did you have please ?
I will be having an echocardiogram to confirm this along with a NT Pro BNP blood test (told this could be falsely positive or raised due to kidney failure )
Any advice would be gratefully appreciated.