CSS/EGPA almost 8 years and it seriously affected my heart amongst other things.
Does anyone have heart involvement with their CSS/EGPA and take steroids (Pred)?
I have just been told by my heart failure nurse that she has found details on the American Arthritis Society's website states that taking over 7.5mg of Pred increases the risk of having a stroke by 6 x times. Anything below 7.5mg will increase it by 2 x times. The reason I was talking to her was I was thinking of upping my steroids because of increasingly annoying symptoms that would suggest that I would need to take more than my current 5mg. However, with the above in mind, I might just grin and bear it.
I know for most of us it is imperative that we take this medication but I just wanted to put it out there for peoples information.
(I have not written this to scare anyone just to inform. I hope that someone finds this useful).