Has anyone with WG (GPA) also been diagnosed with a heart problem, if so, what is the problem? Do you take any medication for it? Have you been told it is associated with your WG or not?
thank you
Has anyone with WG (GPA) also been diagnosed with a heart problem, if so, what is the problem? Do you take any medication for it? Have you been told it is associated with your WG or not?
thank you
I went for my 2nd ritux treatment on Monday and have been told I am to have a heart check. I asked why and was told that as I have fibrosis of the lung (due to the MPA) that 'could' cause extra pressure on the heart. So it might be possibly GPA related.
If that helps.
thank you, have they said that it would your right ventricle which is involved, if you don't mind me asking?
Husband has WG(GPA) and was then diagnosed with angina which led to a triple heart bypass because the arteries had 'furred' up. The doctors put it down to the Wegeners and/or the medications he was taking. All his normal Vasculitis meds plus Pravastatine, Candesartan, Metoprolol, Aspirin.
I unsure what furred up means, is it the same as clogged. I've been taking meds for 2 years now for Wegener s, now having some weird stuff going on. Chest burns with crushing pain and GP says sounds like angina. Also it seems a subclavian artery has moved causing pressure on the esophagus which causes me to sometimes aspirate fluid into my lungs which in turn get infected. Still waiting for appointments with lung & heart doctors.
Have you not had an appointment through yet Samcar? Where are you seen?
I'm in U.S. been going to Brigham&Women's in Boston. Have a rheumatologist treating for Wegener s. Been taking methotrexate 15mg/week going on 2 yrs. Also being monitored for lung nodules & some COPD. New CT scans showed lots of scarring some from aspiration, also showed aberrant right subclavian artery, mild myocardial effusion. I had really bad respiratory infection over summer. Seems better. Still having chest burning with heavy squeezing almost crushing feelings in chest, not ever day but frequent. Will be seeing a pulmonologist this week and have to wait to get in to see cardiologist. I do think maybe I need a change in the meds as frequently the labs for inflammation are high. Anyhow sometimes it's frightening.
I have an aortic aneurysm.
I was told I have an enlarged heart, pericarditis & left ventricular hypertrophy all due to vasculitis. I don't take any medication for it but might have to eventually.
Yep I have a heart condition caused by Vasculitis. Blockages have caused my aortic valve to stretch and become weakened. I have to take beta blockers daily (1.25mg) and,cheery fact of the day, I found out the heart problems could stop me having any children because any extra stress would cause my aorta to tear.
MPA with kidney involvement. I have been struggling with a rapid heart rate condition that was diagnosed during recovery for a total hip replacement (thank you prednisone).
The medication Cartia was prescribed & I believe I'm finally on the correct dosage of 240 mg per day.
I have not met with a cardiologist yet as I'm struggling with so many other mpa caused issues.
That being said, I had no heart issues prior to my mpa diagnosis in July 2013. If the two are not related, it's an awfully big coincidence.
Love the mallet reference, cgarmstr! So true!
Hello. I Dont know if its any help at all. But there has been an episode recently on holby city where the man had vasculitis and needed a heart transplant because of his medicamedicall condition. Think it maybe episode 13 or 14. Perhaps 12 or 11. Sorry but definitely before 15.
My husband has WG and has also been diagnosed with A. He takes bisopropyl 2.5 mg and DIGOXIN 12 mtg.
Sorry should have read AF not A
Hi,
I have MPA, and was diagnosed when I had fluid around the heart, (400ml drained), at the time no medication was given for this. Three years on, I am monitored and currently have a small amount of fluid but not enough to drain. However, on one of the scans it was noted that my Aorta was inflamed, and so I have now been given Losartan to ensure the aorta is opened enough. I am having regular MRI and Echocardiograms to monitor both.
Not sure this is of help.
Good Luck
Jane
Thank you for all replies... it does seem to be that there is a possibility that if you develop a "heart condition" sometime after diagnosis of WG, it could be due to the WG and not something that might have occurred anyway. I think this subject deserves more investigation.
Susan