Another question on a someone's behalf - Has... - Vasculitis UK

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Another question on a someone's behalf - Has anyone diagnosed with Wegener's Granulomatosis (GPA) been diagnosed with a heart condition?

Suzym2u profile image
Suzym2uModeratorVasculitis UK
20 Replies

Has anyone with WG (GPA) also been diagnosed with a heart problem, if so, what is the problem? Do you take any medication for it? Have you been told it is associated with your WG or not?

thank you

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Suzym2u
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20 Replies
LynneJ profile image
LynneJVasculitis UKVolunteer

I went for my 2nd ritux treatment on Monday and have been told I am to have a heart check. I asked why and was told that as I have fibrosis of the lung (due to the MPA) that 'could' cause extra pressure on the heart. So it might be possibly GPA related.

If that helps.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toLynneJ

thank you, have they said that it would your right ventricle which is involved, if you don't mind me asking?

LynneJ profile image
LynneJVasculitis UKVolunteer in reply toSuzym2u

Don't know as he doesn't think anything is wrong at the moment but having tests to make sure. I will ask when I have test but haven't got appointment yet so you might have the answer by then.

Nadine99 profile image
Nadine99

Husband has WG(GPA) and was then diagnosed with angina which led to a triple heart bypass because the arteries had 'furred' up. The doctors put it down to the Wegeners and/or the medications he was taking. All his normal Vasculitis meds plus Pravastatine, Candesartan, Metoprolol, Aspirin.

Samcar profile image
Samcar in reply toNadine99

I unsure what furred up means, is it the same as clogged. I've been taking meds for 2 years now for Wegener s, now having some weird stuff going on. Chest burns with crushing pain and GP says sounds like angina. Also it seems a subclavian artery has moved causing pressure on the esophagus which causes me to sometimes aspirate fluid into my lungs which in turn get infected. Still waiting for appointments with lung & heart doctors.

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply toSamcar

Have you not had an appointment through yet Samcar? Where are you seen?

Samcar profile image
Samcar in reply toSuzym2u

I'm in U.S. been going to Brigham&Women's in Boston. Have a rheumatologist treating for Wegener s. Been taking methotrexate 15mg/week going on 2 yrs. Also being monitored for lung nodules & some COPD. New CT scans showed lots of scarring some from aspiration, also showed aberrant right subclavian artery, mild myocardial effusion. I had really bad respiratory infection over summer. Seems better. Still having chest burning with heavy squeezing almost crushing feelings in chest, not ever day but frequent. Will be seeing a pulmonologist this week and have to wait to get in to see cardiologist. I do think maybe I need a change in the meds as frequently the labs for inflammation are high. Anyhow sometimes it's frightening.

Samcar profile image
Samcar in reply toSamcar

Autocorrect changed the word pericardial to myocardial. It should read pericardial effusion. Sorry, I couldn't get the edit to work. I'm definitely technology challenged.

Nadine99 profile image
Nadine99 in reply toSamcar

Yes, same as clogged

Nadine99 profile image
Nadine99 in reply toSamcar

Furrowed up is same as clogged

hamble99b profile image
hamble99bVolunteer

I have an aortic aneurysm.

valwood profile image
valwood

I was told I have an enlarged heart, pericarditis & left ventricular hypertrophy all due to vasculitis. I don't take any medication for it but might have to eventually.

ShortSarah profile image
ShortSarah

Yep I have a heart condition caused by Vasculitis. Blockages have caused my aortic valve to stretch and become weakened. I have to take beta blockers daily (1.25mg) and,cheery fact of the day, I found out the heart problems could stop me having any children because any extra stress would cause my aorta to tear.

michichgo profile image
michichgo

MPA with kidney involvement. I have been struggling with a rapid heart rate condition that was diagnosed during recovery for a total hip replacement (thank you prednisone).

The medication Cartia was prescribed & I believe I'm finally on the correct dosage of 240 mg per day.

I have not met with a cardiologist yet as I'm struggling with so many other mpa caused issues.

That being said, I had no heart issues prior to my mpa diagnosis in July 2013. If the two are not related, it's an awfully big coincidence.

michichgo profile image
michichgo

Love the mallet reference, cgarmstr! So true!

rrahman profile image
rrahman

Hello. I Dont know if its any help at all. But there has been an episode recently on holby city where the man had vasculitis and needed a heart transplant because of his medicamedicall condition. Think it maybe episode 13 or 14. Perhaps 12 or 11. Sorry but definitely before 15.

Inagh profile image
Inagh

My husband has WG and has also been diagnosed with A. He takes bisopropyl 2.5 mg and DIGOXIN 12 mtg.

Inagh profile image
Inagh

Sorry should have read AF not A

JaneLE profile image
JaneLEAdministrator

Hi,

I have MPA, and was diagnosed when I had fluid around the heart, (400ml drained), at the time no medication was given for this. Three years on, I am monitored and currently have a small amount of fluid but not enough to drain. However, on one of the scans it was noted that my Aorta was inflamed, and so I have now been given Losartan to ensure the aorta is opened enough. I am having regular MRI and Echocardiograms to monitor both.

Not sure this is of help.

Good Luck

Jane

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Thank you for all replies... it does seem to be that there is a possibility that if you develop a "heart condition" sometime after diagnosis of WG, it could be due to the WG and not something that might have occurred anyway. I think this subject deserves more investigation.

Susan

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