Raynauds symptoms: Hi, I've just read... - Vasculitis UK

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Raynauds symptoms

babssara profile image
6 Replies

Hi, I've just read something really interesting to me on Arthritis Research. Once of the symptoms of vasculitis is Raynauds (which I have been told I've got, as well as other autoimmune disease). It stated that feet and hands more at risk. I do know I have symptoms in my hands, the white numb fingers turning red and burning hot, but I didn't know that a red pen like line at the base of the nail bed in feet was a symptom. I always wondered why I had these red marks on my toes. Now I know. Don't know what they do but hey ho, we can't have everything.

Babs x

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babssara
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PMRpro profile image
PMRpro

Have they established whether it is primary or secondary Raynauds? Mine disappeared for years while on higher doses of pred. It's blooming well come back this winter...

babssara profile image
babssara in reply to PMRpro

No not told anything, just that I have it. I will ask when I see rheumy in a couple of weeks.

Sorry to ear our having problems with it this winter. Keep warm.

Babs x

AndrewT profile image
AndrewT in reply to babssara

Dear babssara,

Yes do keep warm-not that it has been that cold recently, at least NOT were I am anyway, East Anglia.

Look after yourself and have a Great Christmas/Happy new year.

AndrewT

orsen-trapp profile image
orsen-trapp

Red marks could also be chilblains? My Raynauds is better on higher doses of pred - and even on lower doses (or it could just be that my husband's heating the house better and I'm not out in all weathers looking after a horse any more!)

Nap1 profile image
Nap1

Babs

I've had raynauds since age 25 now 73. With the predisone I am so warm actually any movement and I sweat. Very different than always freezing. Rather be cold but this is what we are dealt.

babssara profile image
babssara in reply to Nap1

Funny you should say that about pred. I too have been really warm and not too troubled with Raynauds.

Have a lovely Christmas

x

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