A while ago I asked about predisolone and muscle weakness, and in an effort to try and understand what is causing my symptoms, I have attempted another steroid taper.
My dose has changed depending on my symptoms over time but when I taper down I can get to 10mg without too many problems but anything under that causes symptoms. My doctor suggested 2 weeks of alternating daily between 10mg and 9mg and then going to 9mg which I have been on for a week, I have no strength in my arms or legs, feel really unsteady on my feet, I ache, my hands are shaky, I have tingling in my hands and the side of my face and my joints hurt. When I have been at this point before I have thought my illness is not under control and I need a higher dose so have gone back up a dose which always helps but now wonder if my symptoms are in fact caused by steroid withdrawal? My doctor thinks the mycophenolate should be working and I should be able to be without steroids but I always suffer the same symptoms when I get to this point.
I wonder if anyone has had similar problems, if so I would really appreciate your advice.