New treatment - tocilizumab: Hi. I have... - Vasculitis UK

Vasculitis UK

7,783 members6,757 posts

New treatment - tocilizumab

JElsom profile image
3 Replies

Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne yesterday and they've come to the conclusion that things are a bit out of control. I'm going to be started on tocilizumab as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK or any kind of Vasculitis? Many thanks

Written by
JElsom profile image
JElsom
To view profiles and participate in discussions please or .
Read more about...
3 Replies
jinasc profile image
jinasc

Trials are currently being undertaken in 100 hospitals throughout Europe on the use of TCZ for GCA. They are only being started from the end of this year.

The ARC research section has a good article on TCZ well worth reading.

A recent study (albeit with a very small sample) found Tocilizumab was significantly effective in relapsing GCA, TA, or PMR patients. ncbi.nlm.nih.gov/pubmed/226...

The Arthritis Research UK page on the drug can be found at arthritisresearchuk.org/art...

Healthy wishes

vivdunstan profile image
vivdunstanVolunteer

It's been considered for my cerebral vasculitis, and seems to be the option the various consultants are favouring for me if a biologic is needed.

You may also like...

New Biologics Treatment Coming

I have now received the date for my biologics treatment delivery. Then a date for the nurse to...

New Anti-viral treatments are here!

Covid. I was hoping for this because I have vasculitis and take RTX which the (Octave?) study...

tocilizumab for gpa?

has been refused funding for rituximab but has been told she can have tocilizumab. have any of you...

Giant Cell Arteritis - Tocilizumab - NICE

If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or...

Tocilizumab for Giant Cell Arteritis (Temporal Arteritis)

hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA....