If you haven't seen my posts before I am a young female, 23 to be precise, who has been living with WG since 2009.
Before I was diagnosed I was studying for a degree, I was diagnosed in October 2009 and was hospitalized as a result. I missed so much time off university I had to take a break for one year.
I am now approaching my graduation and have to produce a final year project. I am planning on creating a series of educational podcasts highlighting illnesses like this one. It is one that has a series lack of funding and public knowledge of the illness is minimal. (Did you know what it was before you got it?)
I have already released one episode exploring WG but in this episode, I want to look at how it's treated, it's different in so many people and so many people are prescribed different things.
I'd really like to know what your dosage/medication is, how you feel about it and how it affects your everyday life.
I myself have so far been on Cyclophosphamide, Prednisolone, Mycophenelate Mofeti and now Rituximab.
Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
Please note - you will not be indentified in this work but it will help shape my project!!
If you want to email me rather than posting on here, that is fine!
My uni email is: firstname.lastname@example.org