I've Been diagnosed with GPA FOR 5 months now and really soon after coming back from hospital developed cushingoid. I've put on 2 stones altogether in the 3 months since leaving hospital and my face and belly has become into its typical 'moon shape'. I've got large marks (similar to stretch marks) all across my abdomen, thighs and knees.
I've also got the typical puffed shoulder neck and back. I've also lost so much hair....it's probably 1 cm in diameter now when tied back!
If the disease itself doesn't get me down my physical appearance really does.
I just wanted to know if anyone has experienced similar symptoms and if so does it go....will my hair volume return?
I am now on 20mg predisnolone from 60. Taking mycophenolate of 2000mg along with other meds.