Last time I saw my consultant I was told of the vasculitis classifications, the description went like this: "If group of rheumatologists are put into a room and decide on the diagnostic criteria for the variious types of vasculitis at the end of the discussion 25% of cases do not fit within these criteria and therefore remain unclassified"
I am one of the unclassifiable I have symptoms from lots of different types and side effects from treatment.
I take MMF and have been on this for 4 years now with success I also take Prednisolone and have done for over 6 years it is only in the last 12months that I have been able to reduce the dose to 8mg but still have not been offered a bone scan.