How soon after last Cyclo should the mainten... - Vasculitis UK

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How soon after last Cyclo should the maintenance drug start?

Nadine99 profile image
7 Replies

Husband has 6th and last Cyclo infusion on 31st July but then consultant is away for Aug therefore he won't be able to see her until some time in Sept.

Does anyone have any knowledge as to when a maintenance drug should start following the final dose of Cyclo?

I have a feeling that the maintenance drug should start soon after finishing the Cyclo but we just don't know - any ideas?

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Nadine99 profile image
Nadine99
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7 Replies
Nadine99 profile image
Nadine99

Any idea anyone?

suffolkgirl profile image
suffolkgirl

Well, I had my 7th and last infusion of Cyclophosphamide on 22nd Feb. I didn't start taking Azathioprine until 20th April. However, this had to be stopped on 14th June, and I've just had my first infusion of Rituximab this Tuesday.

I thought the same as you, but the delay doesn't seem to have had any adverse effects.

Chris-Bromsgrove profile image
Chris-Bromsgrove

From memory I was at least three weeks, probably four before I started my maintenance drug. There didn't seem to be no urgency on getting me started on it. However no ill effects as a result.

Mooka profile image
Mooka

I started Azathioprine two weeks after I finished my cyclo. My nurse on the day care ward where I had my cyclo was most insistent that I had my appointment within two weeks of finishing cyclo so that I could continue my treatment. I had six pulses two weeks apart.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

Only speaking from experience of talking to many other people with Vasculitis through the helpline it does seem to vary quite a lot, but one common thing I have found is that most consultants tend to leave a gap between Cyclophos infusions and maintenance therapy. Some only a short gap of days and others longer. I think it is best to chat with your consultant and ask the reason why there is such a long gap.

Best wishes

Susan

braindamage profile image
braindamage

I was initially prescribed Methatrexate but the reciveied a phone call advising an immediate stop! Was then prescribed Azathioprine which ajs kept me stable since mid 2007. A couple of weeks seems right - following blood tests?

PatriciaAnn profile image
PatriciaAnn

After Cyclo infusions followed by cyclo oral for a little while, I went about two weeks before starting on Mycophenolate Mofetil.

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