Swollen feet.joint pain.itching .don't sleep.

[Lemrac66]

Hi another night no sleep.

Was diagnosed. Aggressive systemic

Mastocytosis. With fibrosis.. Got to see hospital in few weeks time.very little as been told to me.

Red brown rash on legs..itching.

Swollen hot 🔥 itchy feet.pain in my hands..can not walk very fare

I go dizzy.upset stomach .its an emergency to get to bathroom.sometimes not so lucky.

Enlarged spleen that's painfull.

Can not sleep.

I could go on and on.just want some advise and help.

It's making me very depressed .

Can anyone advise please

From lemrac

[janeps]

Hi there,

Sorry to hear you are so unwell. Can I ask how and where you got your diagnosis?

Thanks x

[Lemrac66 in reply to janeps]

Hi thank you for replying.It started at cancer hospital.

They said I had myloplastic syndrom.

Started me on chemo pills.

8 wks later guys hospital said I have

Aggressive systemic mytocitos with fibro sis

I have hospital at guys on wedthesda.

Any time I ask any doctors what's these things I getting they say it my condition

Any advice please

[Lemrac66 in reply to janeps]

Feeling very sick.Sure I going to throw up at some point

Is the normal

[Mastomum]

Hi there you have lots of symptoms. No wonder you are depressed. First you need to cut down histamine in your diet. I too have same toilet issues. Food triggers to be avoided are cured meat, cheese, any leftovers, tomatoes, any preserves and caffeinated drinks etc. Google low histamine diet. I also take cetrozine, ketotifen and Benadryl for sudden symptoms. Try and keep cool, don't overexert. Stay out of the sun. Avoid triggers such as cleaning products, perfumes. I know it feels overwhelming but get your histamine levels down and you will feel a lot better.Don't rely on this site. It is dead as a nit!

Do something you enjoy to help relax. I write and love listening to audio books

[Lemrac66 in reply to Mastomum]

Thank you for advice.I see hospital today .I have mylowplastic syndrome..and system mastocytosis.

They giving me pills for helping stop leg and

Foot rash.

Never mentioned nothing about diet

But what you say as dead as nit your so correct.

Thank you lemrac66