Hi I have had a pituitary tumour for 20 years and this has lead to hypothyroidism 8 years ago.
I felt ok but never the same after the thyroiditis but then I moved house 2 years ago.
I just got worse and worse after a year I had gall stones not diagnosed by GP who offered antidepressants for pain until I collapsed as it became infected and had emergency surgery .
I had terrible pain in hips and knees could not walk far, breathless and major brain fog. I used a stick and arise and recliner chair to get myself up some days i could not dress myself.
I recognised the symptoms I felt the same as 8 years ago. I told the GP who under pressure referred me to endo they said definitely not and go away oh and by the way your vit D is low. The GP did not know how much to prescribe nor did the pharmacist so they guessed the bottle was French and dosage and patient information was in French but that was not a problem as vit d is not a problem in high doses or so I was told!!
After taking this for two months I felt 100 times worse the symptoms were so bad I felt I was dying my husband took me to NHS 24 doc who said I must have bought the vit d myself at that dose and what did I want him to do I explained could it be the V it d he said see my own GP. I stopped this myself and within one week I had stopped going to the loo during the night 8/9 times and started to feel more like myself. Calcium must have been out of range but they did not both to check.
I then tried again to get GP to listen but he was not interested but upped my high blood pressure pills as by now my readings were very high.
Now I do not suggest or advocate anyone try this without medical help but I came off my ace inhibitor blood pressure tablets and omeprazole proton inhibitor meds. I had read that long term use of omeprazole can lead to pain in joints muscle weakness, b12 is also not absorbed etc if taken long term I had been on this for 3 years. They suggest 3 month course as optimum.
First week no improvement got fed up but decided give it another week to see. I remember it was a Saturday morning I was having my little grandson to stay but I had been dreading the prospect as he is so active. I awoke having slept most of the night for the first time in 2 years. I started to get out of bed and realised the pain was almost gone I could bend easily. My husband came through to the living room to find me laughing dancing and I immediately showed him I could move more freely. Over the next few weeks I found an improvement in stamina and for the first time I could breath on exertion it's feels like taking a breath of fresh air on a cold crisp morning.
So why do I think the improvement happened. I could no longer tolerate omeprazole. But I had also taken all my medications together washed down with a milk coffee in the AM. I used activis and now returned to mercury pharma my old medication maker which I now take at night due to getting wise and reading sites like this.
Why did the GP apologise because armed with all my new knowledge gained on here I confronted him on not telling me to take levo on its own especially with anti acids etc for not listening to me and understanding my symptoms etc. I got an apology he is going to tell the other GPs and speak to the area pharmacist so they can inform people better. RESULT!!
He also supports my return to the endo to get my levels to an optimum for health .
I can't thank you all enough for your informative posts and thyroid uk's main site for the ammunition together people can make a difference!
Lily
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