Grumpy, tired, heavy arms and tight feeling around neck....

[MammaG]

Hi I have an under active over enlarged thyroid and goitre . Have had it for nearly 3 years, developed it after having my little girl and under active thyroid runs in the family.

I'm on 125 micrograms of Thyroxine which my doctor thinks is working for me.

So why do i feel the same, tired all the time aching limbs, pin's and needles in my arms when i sleep, wakes me up. Moody , keep getting split ends even after regular hair cuts.

And just recently my throat feels tight and lumpy, I have just moved house so have been stressed, so wondered if it's just the stress that is making my throat feel tight.

I feel like i am a 100 years old and i'm only 37.

[serenfach]

I feel for you. So sorry you are feeling so bad, I had a lumpy goitre, and all the rest of your symptoms and begged my GP to "trial" me on T3 as well as the T4 I was already taking. Most of the symptoms have lestened to the extent I can mostly cope with them, with the biggest change is that I found my brain again!

Go back to the GP and tell him you feel you are suffocating, have difficulty swallowing (lay it on a bit thick!) and then ask him if in his expert opionion you are the sort of patient that T3 may make a difference. Try and make it as if you are bowing to his superior knowledge (yes, I know, he has no idea, but he is not going to admit that, and by giving him a suggestion, he may just run with it).

Hope this helps., and knowing there are many of us in the same boat. Good luck!

[MammaG in reply to serenfach]

Thank you for your reply.

It's only this last month my throat has felt like this, which is typical because i have just been discharged for the care of the hospital and have moved so now have a new doctor but he hasn't had my records yet from my doctor. I just gave him a letter from the hospital with the results from my scan and bloods taken from my neck.

I was on 150 micrograms once but my doctor reduced it to 125. I have told him i still feel the same..OLD have even had test done for arthritis and they came back all clear.

I'm going to have to look up what T3 & T4 mean ..

[Hidden in reply to MammaG]

They can fast track medical records where there is a "clinical need" which in your case there is. They usually take around 48 hrs to get to your new doctor (sometimes sooner depending on how far they have to travel) assuming they have requested this.

[shaws in reply to MammaG]

This is an excerpt and I cannot access the link at present. It is about adjusting doses of T4.

The TSH level is not well synchronized with the tissue metabolic rate. (Probably most doctors falsely assume that studies have shown that the TSH and metabolic rate are synchronized. But despite my diligently searching for years for such studies, I’ve yet to find them.) Adjusting the T4 dose by the TSH level is like adjusting the speed of your car by a speedometer that's out of synchrony with the actual speed of the car. Adjusting the speed of a car by an out-of-sync speedometer, of course, will get the driver into trouble—either with other drivers who'll object to the car traveling too slowly, or with a police officer who'll object to the car going too fast. And adjusting the thyroid hormone dose by the TSH level gets most patients in trouble—almost always because their tissue metabolism is so slow that they are sick.

Did the Endocrinology department do nothing to relieve your goitre? Maybe, even if they discharged you, you could phone and ask for an appointment. You cannot go on like this.

[ejh1]

Hi

I had an unwelcome dose reduction over a year ago, and quickly developed the symptoms you describe. After increasing the dose again, I happily lost the symptoms.

Maybe you need to go back up to 150?

Good luck

Emma

[MammaG]

Thank You for your comments,

I think I will write a list of all my aches and pains which are many and go and see my new doctor. It's nice to know they can be sorted out, I just thought i would always feel like this. I forgot to say I have a new nodule which is inflamed but no suspicious features(dug out my hospital letter)

It feels like the lump in my throat /neck is getting bigger, you can really see it as well. My left arm always feels the worst, feel's like I have slept on it. when I sit down for a bit then get up my bones click and ache and I have noticed my weight gain is around my tummy which is hard to shift....

[mstp]

Hi MammaG

I gained weight and developed all sorts of aches and pains after starting on Thyroxine. It was only years later after finding this site that I related these events. I also developed my thyroid after pregnancy so I know how difficult it is if you have a young child and thyroid problems. I recently started on another treatment regime and my aches and pains (apart from before I've done a few stretching exercises first thing) are much improved. Your mood should respond once your thyroid levels are sorted out but measuring bloods isnt as reliable as attending to signs and symptoms - eg basal temperature and pulse, emotional temperature, energy levels, etc - so it might be a good idea to start recording what is going on so you have something to take along to your new GP. Have you read Dr Peatfield's book? That might also provide food for thought because sometimes other things need to be brought into line before the thyroid medication will prove effective.

[LouiseRoberts]

thyroiduk.org.uk/tuk/tuk_sh...

Just in case..

Louise

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