Tight feeling in neck : Anyone on here had a very... - Thyroid UK

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Tight feeling in neck

Rotty1 profile image
9 Replies

Anyone on here had a very strange feeling in their neck ,months after partial thyroid surgery .my neck feels tight but numb various weird pains .Yes I have been to GP who at first offered x Ray ,I said what’s that going to show only my bones GP changed his mind ,waiting for a scan

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Rotty1
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SlowDragon profile image
SlowDragonAdministrator

Are you now on Levothyroxine?

If not this may be the remaining thyroid struggling to make enough hormones

Or if on Levothyroxine, you may need dose increase

How long since your operation and have you had thyroid levels tested?

Bloods should be retested 6-8 weeks after each dose change too

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels and thyroid including antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Other patients have found they have titanium clips in their neck after total thyroidectomy. But wether that's same after partial thyroidectimy ...

SlowDragon profile image
SlowDragonAdministrator

Previous post 3 months ago

healthunlocked.com/thyroidu...

Presumably you did get a follow up appointment eventually after surgery?

Rotty1 profile image
Rotty1 in reply toSlowDragon

I’ve had all the follow up appointments the drs just seam to ignore any thing I say ,but it’s not going away just waiting for a scan again ,I have a appointment in December at hospital and appointments in January

SlowDragon profile image
SlowDragonAdministrator in reply toRotty1

Has your GP done any blood tests?

Add results and ranges if you have any

Just testing TSH or TSH and FT4 is completely inadequate

Vast majority of UK patients on here forced to get full Thyroid and vitamin testing privately

Are you taking any Levothyroxine?

Rotty1 profile image
Rotty1 in reply toRotty1

Thank you for your reply ,I don’t seam to be getting anywhere I’ve had 68 blood tests this year 4 ct scans and 5 mri scans and my Doctor never seams to have the results (last one August and they still haven’t got results) nhs round here is a nightmare x

Rotty1 profile image
Rotty1 in reply toRotty1

I’ve been given nothing i asked for all tests back in March after surgery they came back ,just border line since then not checked I’m now feeling really weird ,other side of thyroid is starting to swell ,this weird pins and needles feeling in neck gets me down I told the dr but said x Ray I was quite sharp with him and what’s that going to show ? He then changed his mind scan or ultra sound I’m a bit lost here

Batty1 profile image
Batty1 in reply toRotty1

I had thyroidectomy and on and off I get the neck muscles(straps) that get so tight I think it's going to choke me and my Endos have no idea why it happens it could be a muscle spasms .

Nanaedake profile image
Nanaedake

If you had partial thyroidectomy then it could be a result of scar tissue shrinking. Some people get adhesions.

Rotty1 profile image
Rotty1

Thank you for reply

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