Dear all, I've been lurking here since diagnosis in September, soaking up information, and this is my first post...
Levels as follows:
19th September 2012
Free T4 - <1.0 (11-25). Started on 75mcg. Weight 111kg
TSH - 50.8 (0.27-4.200)
CK enzymes 1370 (<200)
26th October 2012
FreeT4 - 11 (11-25)
Serum TSH - 33.0 (0.270-4.200). Increased to 150mcg
CK enzymes 143 (<200)
19th November 2012
FreeT4 - 18 (11-25). Increased to 200mcg - weight 103 kg
Serum TSH - 13.0 (0.270-4.200)
2nd January 2013
Serum TSH - 0.2 (0.270-4.200). Results received today - TSH NORMAL.
FreeT4 not tested See doctor in 3 months' time
I still have hypo symptoms (fatigue, cold extremities, carpel tunnel, breathlessness, hoarse voice, rage (very sudden - I no longer have an 'irritated' state - I go straight from reasonably content to furious in one almighty leap), cramps, heel pain, swollen features etc etc) I felt marginally better for a fortnight after the November increase to 200mcg only for symptoms to return. Saw Endo on 11/12 who said he'd "maybe test cortisol once TSH in normal range, as previous test 'wasn't normal' ". He did not elaborate and asked me to return in 3 months.
Have had symptoms for years, treated for depression (given Citalopram), menopause (10 years HRT, hysterectomy in 2009), none of which helped. I was only diagnosed after ceasing smoking Jan 2012, after at least 6 thyroid blood tests which all returned 'normal' until my September test which suddenly showed me to be hypothyroid, 3 weeks after Endo told me that all tests were normal; that he'd be unable to help me and suggested I saw a neurologist...
I'm doing everything suggested here, Levo with water, taking iron, D3 and B12 supplements (prescribed by GP) all at least 4 hours away from Levo...
My question is - am I being a horribly impatient patient? I am so tired, I am sleeping 16-18 hours a day, waking unrefreshed. Going upstairs is horrible, standing up feels as though gravity has somehow increased tenfold. A shower takes a couple of days to recover. A trip to the supermarket renders me flat out on the sofa for the whole afternoon. I took early retirement in 2010 because I felt so ill and couldn't cope with travelling and long hours, but always intended to get a part-time job, but this has proved impossible.
Apologies for very long first post... But I now can't see the wood for the trees and can't imagine how I'm going to last 3 months before seeing anyone. Should I be going to see someone privately?
Grateful thanks to all for such an informative site...