Not feeling good, bad day. ..: diagnosed with... - Thyroid UK

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Not feeling good, bad day. ..

Karlos profile image
8 Replies

diagnosed with hypothyroidism/hashimotos a year ago. Been feeling up and down, mostly down. Had a good summer, stuck with my exercise regime and was able to cycle a 100 miles.

Last couple of months have been really rough, struggling to get into work even three days a week. I'm losing the will to fight.... currently on 125mcg levothyroxine, was on 150 a few months back but couldn't handle that much. Could it be possible that I now need more?

Got no energy at all and can't be bothered to even get out of bed today.

Blood test on Wednesday...

Oh and I walked out of my last endo appt...didn't do myself any ffavours there I know but totally lost confidence in the medical system after failing to sort me out over the years.

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Karlos profile image
Karlos
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8 Replies
sporty333 profile image
sporty333

Perhaps ur needing an increase then. Someone suggested to me one needs more thyroid meds in the winter months :0)

Si

I agree with Sporty, I seem much better in the summer months . As soon as the weather turns cold I can hardly get out of bed. I do believe the thyroid has to work harder in the winter. I feel the cold so much as my temperature is very low. Hope when you get the results of your blood test, it will point to a need for an increase. Ask if you can have your vitamins levels checked too, anaemia is more common in winter time too. Take care

betty profile image
betty

Hi karlos

Hopefully your blood test will show you just need to increase your Levo. If you have had a good summer, then it may be the answer as some folks seems to say we need a bit more in the winter.

It is extremely frustrating when the Docs don't "sort us out" but we need to learn as much as we can re our thyroid issues at least then we do get a bit more attention when they realise we do know something about it and won't just be ignored.

Hope tomorrow is a better day. x

Karlos profile image
Karlos

Thanks all, the worst thing is I'm hardly sleeping, sleep seems worse when something isn't right.

I don't feel cold or anything, we'll see...

Cheers.

ritz profile image
ritz

levo never worked for me at all so i take t3 and armour - but even so i do notice i have to take more in winter............so i could be you need more

Clarebear profile image
Clarebear

Or it could be that you need some T3. I too never felt well on thyroxine and am well now on Armour (T3/T4 combo). It would be very helpful if you could get your FT3 tested on Wednesday as well, but most labs won't test it unless it is an endo asking for it.

Karlos profile image
Karlos

Well I've had T3 tested in the past and it's been 'within range'??

Might go private, banging my head against a wall.

Stourie profile image
Stourie

Hi "within range" doesn't tell you much. Like t4 it is better to be mid or near the top of the range to be of much use.

Also if 150 t4 was too much why not try the extra 25 t4 every second or third day to see how it goes.

Jo xx

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