TSH levels right - sill feeling bad :(

OK, at Christmas  my GP suggested upping levo to 100 from 75 as I complained I am still symptomatic.

Three months on I get my blood tested and ghen get a call saying to reduce back to  75 immediately as my level had dropped so much.

This is the thing, in the last 3 months at some point me TSH must have been OK as the latest reading was 0.14 but I don't recall feeling any better. I expect that with the reduced levo this will climb back up now.

I am going back in July for further bloods, I am going to ask for a full vitamin check etc. Should I ask for T3 and T4 and reverse T3, could be I m having trouble coverting, thoughts please?

5 Replies

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  • They don't often do these but ask or you can get a private test ask for Free T4 and Free T3 and in this link you'll see why they're important.

    thyroiduk.org.uk/tuk/testin...

  • Hi Gillybean

    When you last went for your blood tests, did you make sure that you hadn't taken your levo for at least 24 hours? and did you ensure that you had fasted for about 10 hours? (you can have water) Also, make sure that you have your test as early as possible so that the TSH is highest and that way it is more of a true reflection of your thyroid function.

    You may very well have an ok TSH, but that doesn't mean that your thyroid is ok. If your T4 and T3 are not tested then you can't know if you are converting very well. My GP wouldn't do them either so I went private and had them done. Not only did it show that my T4 and T3 were a little low and my TSH a little high, meaning that I was slightly under medicated, but that is how I discovered I had Hashimoto's. If you can pay to get them done then it's worth it. I went on the thyroiduk.org.uk site and through them had my blood tests done with Blue Horizon Medical. If you do it with them then thyroid UK will get a small donation, plus you get a discount! They do a thyroid plus ten test for £89 with the discount. That will do all the thyroid tests you probably need plus vitamin B12, ferritin, folate and thyroid anti-bodies.

    If you do that then you can post the results on here, (with the ranges included in brackets) and people with more experience than me with be able to interpret them for you.

    Good Luck! :)

  • Gillybean129,

    I don't think NHS tests rT3.  Low TSH, high FT4 and low FT3 indicates poor conversion.  It's unlikely NHS lab will test FT3 unless TSH is <0.03 even if your GP can order it.  It may be worth ordering private thyroid tests from Blue Horizon or Genova via thyroiduk.org.uk/tuk/testin...  Blue Horizon Profile 10  includes options for some vits and minerals so you could order ferritin, B12 and folate and order vitD from City Assays.

  • David M Derry:  BMR (basic metabolic rate) "still remains the only test that actually measures the effects of thyroid medication on the human body" 

    thyroid-info.com/articles/d...

    Or is it? T3 in 24h urine has appreciated proponents

  • Go by how you feel not numbers.

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