Most things seem to be bad for hyperthyroid when I check online which seems difficult to maintain a good physique with what seems to be acceptable
Everything from gluten to dairy.
Is there any people with hyperthyroid on this forum that can share their diet plans?
Please state gender, age, calories and proteins in your meals
my friend has Graves’ and is now in remission and she avoids any stimulates like caffeine and alcohol. She has a good diet with plenty of fresh veg and fruit. I wouldn’t over exercise with hyperthyroid because it can increase your heart rate which is not a good idea. My friend does lots of walking but no running. Just don’t push yourself and avoid stress
If with Graves Disease the body is generally in a ' heightened state ' and neither physical exercise nor weight training recommended - even if you feel your body able to do same -
a gentle walk for 15 minutes maybe twice a day is enough if recently diagnosed -
as there can also be something of a brain / body mismatch - with your brain in overdrive suggesting you run a marathon whilst your body is collapsed with no energy and exhausted -
Do not push yourself - as this will make your situation much worse -
Eat healthy, cooked from scratch food - good proteins, fruits and vegetables and no fast fix processed foods and drinks.
If you care to share your age, gender, country you are living in, health issues, diagnosis and treatment so far - we can better understand what is going on and help you :
Thank you. I hadn’t realised Graves under control (ie T3 and T4 within range) could cause fatigue. There does not seem to be much online regarding graves and fatigue. I have been fatigued for the last 4 years. I cannot exercise at all. I thought perhaps I might have me/cfs as I did not see many graves sufferers complain about fatigue and brain fog. I can just about deal with my household chores with lots of breaks in between chores. I monitor my vitamins, folate, ferritin etc and all the blood tests are ok. I’m gluten free and mostly vegan. I cook from scratch don’t eat processed food and only eat organic. I take a bunch of the usual supplements. I have tried only drinking decaf coffee for the last 9 months . I only drink one cup of decaf a day. Is there any advice on how I might get some relief from my fatigue and brain fog? I’m female, 66, diagnosed with graves in 2016.
I see I replied to your only post on the forum some months ago suggesting you reduced your dose of the AT drug - as I felt your T3 and T4 - though in the range - were much too low in the range and thought you were likely dealing with symptoms of hypothyroidism.
Did you reduce the AT drug and did you find any improvement in your symptoms ?
Do you maintain your core strength vitamins and minerals at optimal levels as these alone can compound your ill health further than necessary ?
I now aim to maintain my ferritin at around 100 - folate at around 20 - active B12 at around 125 ( serum B12 at 500++) and vitamin D at around 125.
We should really be replying using your own post rather than use this O/P post -
Maybe start a new post yourself if you have any updates from your last post so we keep all your information together on your Profile page - which you can find by pressing on the Profile Icon on this page that sits first on the task bar alongside My Hub - Chat - Post - Alerts and Menu icons.
Starting 1st October I started reducing my Carbimazole as suggested - I took 1 tablet every alternate day and 1/2 a tablet in between, skipping Carbimazole on Sundays which made the total 22.5 mcg a week. There didn't seem any adverse effects so,
from 28th October, I reduced further, taking 2.5 mcg carbimazole a day 7 days a week that is 17.5 mcg a week versus my earlier intake of 30 mcg a week (when I first wrote to the forum). I have been on that dosage since.
I did a blood test on 8th December 2024 to check my thyroid hormone levels . They did not seem to change much from what I shared above in September:
TSH: 1.54 mIU/L (0.35-4.55) versus 1.45 earlier
Free T4: 15.6 pmoI/L (12.2-22.4) versus 15.9 earlier
Free T3: 4.3 pmoI/L (3.5-6) versus 4.2 earlier
I did feel better in December and January (although it does not seem seem related to my T3 as my T3 had not changed much?). Both months I only had 9 bad days in the respective months. I was so happy thinking I might have turned the corner but in February I went back to my usual 11 bad days out of 28, i.e roughly half a month. And to date in March I have had 11 bad days out of 24. Bad days is when I am mostly in bed and cannot do much but lie in bed.
I will be seeing a new endocrinologist on 23rd April. I will do another blood test around 13th April so I can go to the endocrinologist with updated readings. I do often rerun my antibodies (at least once a year - the ABs are always there) and will be doing so in April.
Do you think I should decrease my carbimazole further before my upcoming blood test planned for 13th April and see what that does to my T3? If yes, how do I decrease?
You asked about eyes previously. I just went to an opthamologist three weeks ago who suspects I may have glaucoma but says she could not see any thyroid eye disease. I have dry eyes and two opthamologists see thinning of my optic nerve. I was wondering if Graves can cause or contribute to Glaucoma and dry eyes. Anyway the good thing is I discovered possible Glaucoma because of my once a year check up to see if I have TED so my Graves has been of some help to me.
Jokes aside, my on-going fatigue and brain fog is getting very depressing. It's been 6 years. Despite that if someone could confirm that living with fatigue and brain fog are part of Graves, common/normal and there's nothing some people can do, that would be comforting to know.
Thanks.
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