I need help in Thyroid Disorder: Patient History... - Thyroid UK

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I need help in Thyroid Disorder

umairali profile image
5 Replies

Patient History: Thyroid Disorder and Treatment Summary

Patient: [name redacted by admin]

Date of Birth: [redacted by admin]

Medical History:

Diagnosed with hyperthyroidism.

Received 29 mCi of I-131 radioactive iodine treatment on August 12, 2020.

Laboratory Results and Treatment Timeline:

August 2020 (Post I-131 Treatment):

TSH: 29.82 (Normal Range: 0.27-4.0)

T3: 1.07 (1.30-3.10)

T4: 48.07 (66-181)

Started on Thyroxin (Levothyroxine) 50 mcg, 3 tablets daily.

2 Months Later:

TSH: 1.9 (Normal Range: 0.9-1.8)

Free T4: 4.4 (Normal Range: 0.20-4.0)

2 Months Later:

TSH: 1.20 (0.27-4.0)

T4: 1.77 (0.9-1.7)

September 2022:

TSH: 0.16 (Normal Range: 0.27-4.0)

T4: 144 (66-181)

Medication changed to Thyronorm (Abbott) 75 mcg, 2 tablets daily.

December 2022:

T4: 1.8 (Normal Range: 0.9-1.8)

TSH: 1.25 (0.20-4.0)

June 5, 2023:

T4: 2.10 (0.9-1.7)

TSH: 0.478 (0.27-4.0)

Medication changed back to Thyroxine (GSK) 50 mcg.

Dosage adjusted to 3 tablets daily for 6 days a week, 2 tablets on the 7th day.

October 26, 2023:

T4: 1.7 (Normal Range: 0.9-1.8)

TSH: 0.8 (0.2-4.0)

August 2024:

FT4: 1.8 (0.9-1.8)

TSH: 0.6 (0.2-4.0)

Dosage adjusted to 3 tablets daily for 6 days a week, 1 tablet on the 7th day.

2 Months Later:

TSH: 0.14 (Normal Range: 0.27-4.0)

T4: 1.94 (0.9-1.7)

Dosage adjusted to 3 tablets daily for 5 days a week, 1 tablet on the 6th day, no medication on the 7th day.

December 19, 2024:

T4: 1.3 (0.90-1.8)

TSH: 2.7 (0.2-4.0)

Medication changed to Thyroxine 50 mcg, 2 tablets daily.

February 10, 2025:

TSH: 9.58 (Normal Range: 0.4-4.5)

Current Medication:

Thyronorm 50 mcg, as prescribed by the current doctor:

3 tablets daily for 5 days a week

1 tablet on the 6th day

No medication on the 7th day

Summary:

The patient has a history of hyperthyroidism treated with I-131 in 2020. Since then, there have been significant fluctuations in TSH and T4 levels, requiring multiple adjustments to medication and dosage. The patient has been on various brands and dosages of levothyroxine. The most recent TSH level is elevated, indicating possible hypothyroidism.

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umairali
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SlowDragon profile image
SlowDragonAmbassador

Dosage adjusted to 3 tablets daily for 5 days a week, 1 tablet on the 6th day, no medication on the 7th day.

December 19, 2024:

T4: 1.3 (0.90-1.8)

TSH: 2.7 (0.2-4.0)

Dose levothyroxine didn’t need reducing after these results

Ridiculous idea to have radically reduced dose on 6th day and even worse 7th day no medication

16 x 50mcg tablets per week in total 🟰 800mcg in total per week

114 mcg per day

Medication changed to Thyroxine 50 mcg, 2 tablets daily.

100mcg per day = 700mcg per week

February 10, 2025:

TSH: 9.58 (Normal Range: 0.4-4.5)

Not surprising as dose was reduced

Current Medication:

Thyronorm 50 mcg, as prescribed by the current doctor:

3 tablets daily for 5 days a week

1 tablet on the 6th day

No medication on the 7th day

So now back on 800mcg in total per week

Why not just take 125mcg per day

Your body needs stability of same dose every day

Retest in 8 weeks

ESSENTIAL to test vitamin D, folate, ferritin and B12 levels too

What vitamin supplements are you taking

umairali profile image
umairali in reply toSlowDragon

I am taking this medicine 800mcg per week from 3 weeks I feel like tired and numbness with weight gain

pennyannie profile image
pennyannie

Hello Umairali and welcome to the forum :

There is nothing on your Profile - can we at least know your age, sex, and where you are in the World -

Do you have Graves Disease and why you were treated with RAI thyroid ablation ?

It is essential that you are dosed on your Free T3 and Free T4 readings and not a TSH -

You have had a medical intervention and your own body's HPT axis - the Hypothalamus - Pituitary - Thyroid feedback loop on which the TSH relies on as working well - is now down regulated as your thyroid totally burnt through and rendered disabled by ingesting this toxiv substance - Radioactive Iodine.

You now have no functioning thyroid in situ to complete this circuit feedback loop and your ' own thyroid function ' been cut off to stop you going ' hyper ' ever again and now you are Primary hypothyroid and totally reliant on taking thyroid hormone replacement for the rest of your life.

rcpe.ac.uk/sites/default/fi... - if with the horrible brain fog - just go to - Page 3 :

No thyroid hormone replacement works well until your core strength vitamins and minerals - those of ferritin, folate, B12 and vitamin D are up and maintained at optimal levels.

RAI is known to trash vitamins and minerals, amongst other things.

You might like to start reading around on Graves Disease post RAI thyroid ablation and the most well rounded of all I researched is that of Elaine Moore. books and website - though current we can only access Elaine's website through the archives :

web.archive.org/web/2024122...

Just for reference a fully functioning working thyroid would be supporting you on a daily basis with trace elements of T1. T2 and calcitonin + a measure of T3 at around 10 mcg + a measure

of T4 at around 100 mcg.

T4 - Levothyroxine is a storage hormone and needs to be converted in your body into T3 which is the active hormone that runs the body with the thyroid ( if you had ) synchronising all your bodily needs and requirements from your physical needs and stamina through to your mental, emotional. psychological and spiritual well being, your inner central heating system and your metabolism.

Barbara S Lougheed 's book title says it all -

Tired Thyroid - from Hyper - To Hypo - To Healing - Breaking the TSH rules -

which I'm afraid in primary care in the UK is all the doctor know and have at their disposal.

umairali profile image
umairali in reply topennyannie

My Age is 24 years old and Sex is Male Also from Pakistan

pennyannie profile image
pennyannie in reply toumairali

I m sorry you are going through this - I'm not sure what the treatment options are in your country but you need to be managed by an endocrinologist and managed on your T3 and T4 results and not a TSH seen in isolation.

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