Well I had my annual diabetes check and all is still 'good', altho I would like to improve as I had excellent control last year. I'm diet only. Only downside was I have put on half a stone since last year, which I knew cause of my clothes being a tad tight, but in defence as I am soooo tired I am achieving very little on a daily basis. Everything is an effort, I'm sure you all know what I mean.
I took the opportunity to speak to the nurse about my concerns regarding my thyroid blood test results, taken a few weeks ago alongside my glucose check.
She said my results were fine and the Dr is happy with them, no concerns. I pointed out how my TSH level has been rising for the past ten years and that when it was just under the 'range' last year I took note and started looking into it. Mentioned that I joined this forum for advice etc.
Last year you (collectively speaking) advised I was definitely hypo. So this year specifically requested thyroid level plus t4 and t3 and antibody test, also vitD and B12 as suggested on here. I got all I asked for except the t3 and Dr refused an antibody test. No explanation.
I posted these and again was advised definitely hypo.
My last results were:
TSH 5.71 (0.3 - 5.0)
T4 10.2 (7.9 - 16.0)
B12 464 (120 - 900)
VitD 82 (50 -150) five years ago it was 30, so deemed deficient.
The response I got was I am only just over the range, tried to tell me a healthy level is within those ranges. Suggested I was worrying over nothing, said since the pandemic a lot of people are saying how tired they are and most people have low vitD and B12. I told her that I had been supplementing she thought those levels were fine too, and yes they're ok and better than previous level but need further input to improve them. Which I'm working on. Also now taking vitB complex as recommended here.
She suggested it's my age, suggested I get a job. I worked until 70, only then giving up due to extreme tiredness. I was a foster carer for babies and littlies. I think only managed that cause I was working from home, so to speak.
I said about private testing and she admitted Dr likely not to take notice of a test she hasn't arranged. She also wanted to know why I wasn't taking the statins, because everyone with diabetes is meant to take them. I pointed out that statins can increase glucose levels. It just goes on.
Not sure what to do next. I can keep working on my vitamin levels.
Apologies for the long post.
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CustardTarts
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Make appointment with different GP and push for retest in 3-4 months. Be sure to stop B complex 4-7 days before and book 9am or earlier appointment for highest TSH.
NICE guidelines suggest you can begin treatment with 2x TSH results above range on the NHS, 3 months apart.
thank you. I did do my test before 9am as suggested on here. As I've just started the b complex I will certainly be mindful before the next test. I hadn't started before the last one
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need separate methyl folate couple times a week
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
I'm taking ingennus b complex as recommended on here, only just started, had started on B12 initially again after initial advice on here in response to my last test a year ago. So although B12 improved its still below what I would like. I'm taking 4000iu vitD + k2 . I have magnesium, but the capsules are huge so empty them out into something, but is still gross, so may have to find alternative. I noted one of the fillers is brown rice flour, so probably accounts for the taste and clogginess as it doesn't dilute. It's wellgard Mag 1200 glycinate.
I'm taking ingennus b complex as recommended on here, only just started, had started on B12 initially again after initial advice on here in response to my last test a year ago. So although B12 improved its still below what I would like
Recommended to take separate B12 as well as vitamin B complex until B12 at least over 500
Then see if you can reduce and stop B12 after few months
Magnesium
I take Thorne Magnesium citramate. Large capsules….so I also empty into small glass water …..very little discernible taste
I was taking Igennus Magnesium capsules, but they changed them to huge tablets……so I am using them up by chopping them up with sharp knife. Don’t taste too bad
I am considering a private test for me and my sanity. Won't be able to do the finger prick one after watching a friend try . So will have to consider paying the extra for it to be done
thank you, I knew peeps on here would understand. I also have fibromyalgia so I'm used to feeling tired all the time. This is different, at least I was functioning before. I have been struggling for about five years now. That's what prompted me to go and see the dr. we discovered a vitD deficiency, so given a massive boost then told to supplement for life. To be fair it hasn't made a jot of difference, but the levels are not now deficient
Did she suggest running next year's London Marathon or maybe climbing Mount Kilimanjaro? I'm sure that's achievable at 76, with diabetes and Fibro. Stupid moo.
If that nurse isnt too tired after a long day seeing patients perhaps she could read up on thyroid conditions and how crap they make you feel. They really do pluck out the stupidest things to say from their rectums.
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On Thyroxine (75mg) but still do not feel right.
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Whats wrong with me? Low vitD, but other symptoms / low results too...
