Thyroid results : Hi I am currently taking 200mg... - Thyroid UK

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Thyroid results

Lookingfiranswers profile image
15 Replies

Hi I am currently taking 200mg a day levothyroxine recent results are.TSH 0.16

T3 141

T4 33

T4L 1.59

Vit B12 267pg/ml

But D 53.

MCV 102

Symptoms are very tired no energy, aching legs, irritable, low mood, depression, loosing hair. Headaches etc

Also have lupus, Sjrogrens vitiligo.

Appointment for doctor next week would you reduce to 150mg in the meantime?

Thank you.

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Lookingfiranswers
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15 Replies
Buddy195 profile image
Buddy195Administrator

Welcome to the forum Lookingfiranswers

So we can offer better advice, can you tell us more about your thyroid condition, eg when you were diagnosed, plus reference ranges for the tests provided (as these can vary between laboratories)

Have you had any thyroid antibody tests? This would show if your thyroid condition is auto immune.

Have you any other key vitamin tests (ie ferritin and folate in addition to vitamins D and B12 provided)?

Lookingfiranswers profile image
Lookingfiranswers in reply toBuddy195

Hi I'm living in Spain and I just took those results from my rheumatology appointment so I not sure about the reference ranges. I have to try and translate the results.I was diagnosed over 15 years ago with underactive thyroid. Mostly I took 150 mg daily but they put it up to 200 mg a while ago.I also have lupus, Sjrogrens and vitiligo.

Thank you

Lookingfiranswers profile image
Lookingfiranswers in reply toLookingfiranswers

Sorry forgot to add I think I will try and get ferratin and folate this week if that would be helpful?

Buddy195 profile image
Buddy195Administrator in reply toLookingfiranswers

Definitely helpful to have these, as they support thyroid health. I would put all new results/ ranges in a new post, to alert more members.

Buddy195 profile image
Buddy195Administrator in reply toLookingfiranswers

Can you contact the rheumatology department and ask for a print out of results, including reference ranges?

If you have other auto immune conditions, it’s highly likely your thyroid condition is also autoimmune.

Lookingfiranswers profile image
Lookingfiranswers

Yes I would bet it is .I'll see if I can get more results.

Many thanks

Buddy195 profile image
Buddy195Administrator

We really need to see lab ranges for FT3 and FT4 to provide better advice re medication.

I wouldn’t reduce by 50mcg in one go. Maybe look to reduce by 25mcg (if this doesn’t aggregate adverse symptoms). I personally like to adjust super slowly (ie 12.5mcg) as I find changing my dose in larger increments causes me increased anxiety.

Lookingfiranswers profile image
Lookingfiranswers in reply toBuddy195

Ok thanks

catpotter44 profile image
catpotter44

Hi! I live in Spain too. Did you know you can access all your results online, through clicsalud. You will need clavepin or digital certificate

Lookingfiranswers profile image
Lookingfiranswers in reply tocatpotter44

Had a look online to see about it but it seems very complicated, did you manage to do that yourself? I'm in the Murcia region.

Lookingfiranswers profile image
Lookingfiranswers

Hi I will try to do that. Thank you 😊

jgelliss profile image
jgelliss

I'm so sorry your not feeling feeling well. It's not fun by any means. Personally lowering or raising thyroid dose by large amount and 50mcg is a very large dose to lower on one go. Many lower by 12.5mcg and the most 25mcg at a time. You stay on it for 6-8 weeks. Give you body time to acclimate to the changes. You might find that lowering the dose just by 12.5mcg can really make a huge difference. By going with big changes you might be over shooting your "Optimal". Slow and Steady wins the race.

You might also try to see and check your Vitamin D/K2, Iron/Ferritin, B-12/Folate. These nutrients are components to help our thyroid hormones to work better for us.

I hope you get sorted out soon.

Lookingfiranswers profile image
Lookingfiranswers in reply tojgelliss

Thank you for replying.I've only got 200 or 150 at the moment so I need to try and get smaller amounts.

I have a doctor's appointment next week.

It's so hard to get to see a doctor these days. My vit B12 was 276 last week and vit D was 53.

klr31 profile image
klr31

You sound like you might be on too much thyroxine.

helvella profile image
helvellaAdministrator

Elevated MCV (I assume - top end usually around 98) suggests low folate and/or B12.

There are other possibilities but these are the most common.

Although a B12 level of 267 might be in the reference interval, it is not unusual to need it to be higher. You could try taking an ordinary B12 supplement - 500 or 1000 micrograms and most people seem to prefer methylcobalamin.

A lower dose, such as 50, might be all you need, but a higher dose really isn't going to be a problem.

And get folate tested asap!

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