I have been having problems with thyroid for some time now. Couple of years ago I had overactive thyroid then got back to normal and been having troubles again coming back as euthyroid but thyroid antibodies came back high. I have never been advised any treatment.
Before I give my gp a call I want to know your opinions as I was messaged that I don’t need a treatment but annual test only.
Results :
Serum TSH level 1.9 miu/L [0.2 - 4.0]; Normal TSH, suggests patient is probably EUTHYROID.
The NHS often only test TSH which is completely inadequate. For the full picture of whats happening we need to see TSH, FT4 & FT3. Sadly the only option to see these results is to buy your own private blood test.
If you're doing that then you can also test key vitamin levels which are often low or deficient in thyroid disease due to the gut absorption problems caused.
Hashimoto's often starts with a brief period of being hyper and then levels begin to drop. They can fluctuate either wway for quite some years.
When hypo we get low stomach acid which means we cannot absorb vitamins well from our food, regardless of a great diet. For thyroid hormone to work well we need OPTIMAL levels of vitamins.
Have you recently or could you ask your GP to test levels of ferritin, folate, B12 & D3? Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/testing/priva...
There is also a new company offering walk in& mail order blood tests in London, Kent, Sussex & Surrey areas. Check to see if there is a blood test company near you. onedaytests.com/products/ul...
Only do private tests on a Monday or Tuesday to avoid postal delays.
So the long and short of it is that until we see a full thyroid panel of TSH, FT4 & FT3 we cant be sure that all is well.
Which vitamins are you taking? Multivitamins not recommended. Better to test levels and target key vitamins with high dose, specific, quality supplements.
Have you tested your calcium level to check and see if you need it? Not recommended to supplement unless you have done that.
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Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Will look into, I know diet is key with Hashimoto. However have been extremely hungry for several weeks (same with overactive) and going from having 3 meals through out the day last meal around 7 to eating before bed and waking up with the stomachache and hunger again.
When you were diagnosed as having an over active thyroid, were antibodies tested then? As Jaydee1507 has said, this could well have been a transient phase. I too had a significant ’hyper like’ phase initially, but thanks to members of this forum, I pushed for correct antibody tests (which ruled out Graves in my case).
Do push for a full thyroid panel and key thyroid vitamin tests and look at private options if you cannot access these via your GP (like so many of us do here).
Further information on antibody tests:
Graves Disease (hyperthyroidism) needs to be confirmed via positive TRab or TSI:
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